RE:Hopewell Associates

[Guest guest]

I agree. She is our Dan practitioner and is so knowledgeable, as is

everyone in that office. I call her when I have a question about my son's

health because she is way more knowledgeable about the health of autistic

children and the SCD than any Pedi I know.

-Kim

Mom to Noah 36 months, ASD, SCD since Feb 2005

Message: 13

Date: Sun, 30 Apr 2006 04:25:40 -0000

Subject: Re: Desperate, need advice

Hi Vera,

I am so glad that you found out about SCD when your children are so

young!

Pamela Ferro RN is the DAN practitioner who has worked with SCD for

the longest time;she is considered to be the expert on SCD for

children with all types of problems. Her friend developed a baby

formula for SCD using the goat yogurt. I think that you should try

to see Pamela Ferro or have a phone consult with her. I have a lot

of hope for your daughters because Pam has helped many parents get

miraculous results with SCD.

Pam Ferro RN

Hopewell Associates

2 Brandt Island Rd.

PO Box 1747

Mattapoisett, MA 02739

ph:

fax:

Mimi

> It seems that her system can not really

> tolerate any commercial formula at this point. Please, please,

> please does anyone know a recipe for a home made formula that

might

> help? In the " Breaking the Vicious Cycle " book there is a recipe

for

> baby formula but it contains honey which you are not supposed to

> give before they are 1 y/o. Does anyone have any experience with

> this home-made formula? Other any other good tested recipes to

try?

> I would be very greatful for any feedback.

> Thank you so much for your help,

> Vera

>