RE: Yogurt Investigation/ was Re: SCD success

May 4, 2006

> I always try to find out why things go wrong with the yogurt.

> Please send me the post number of these SCD stories on the GFCFkids

> list.

Gosh, this was about 2 years ago when we were new to GFCF. I just recall

reading about this and was curious about what SCD was as I'd never heard

about it since I was new to any type of dietary intervention. Sorry.

> I used to search for SCD on that GFCFkids list and the one SCD

> person who did return to GFCFkids was a mother named M-----. M,from

> what I recall used the cow yogurt(not what we recommend).

This may be the same person. Though I thought it was goat yogurt. I

recall thinking " gross " , LOL.

> It sounds strange that a parent would return to GFCF just because

> their kid did not tolerate the yogurt since we ask the parents to

> wait until there are IMPROVEMENTS in the gut before trying the

> yogurt.

Yes, and like I said, I don't recall the conditions under how the yogurt

was used. That may very well have been the case. I was just getting a

handle on GFCF at the time and SCD was not even on my radar. I just

remember reading posts and thinking " wow, I can't believed they tried

dairy " , at the time I was very much into the 'no dairy' mindset. I also

recall reading something about it on one of the GFCF websites, but

again, 2 years ago.

>The parents then resumed dairy free SCD.

> Why run back to GFCF if you saw gut improvement with your child

> prior to trying the yogurt? Our website is full of recipes that are

> dairy free;there is no SCD police to come to your house and force

> you to eat the yogurt.

LOL. Of course, I absolutely agree. We can do the yogurt, luckily. I was

just trying to explain to Antoinette the reasoning behind why some

parents DON'T use it. She was pondering the idea of whether the reason

that some kids don't get recovery or the good results they are looking

for from SCD is because parents are scared to try the yogurt.

> My guess is that these parents tried the yogurt right at the

> beginning of the diet,saw some die off to SCD and were so scared of

> casein that they blamed the yogurt for the die off AND NEVER

> EXPERIENCED THE GREAT RESULTS WITH SCD.

This is likely the case for several. However there doesn't seem to be

any one intervention for ASD that helps ALL the kids that it is tried

on. I just don't believe that and there isn't a study out there that

shows that. The closest we have is to use the ARI website and read the

parent survey data. I think that is why it is so hard for mainstream

medicine to embrace any of these things, be it SCD, chelation, B12

shots, targeted supplements, etc. We all know that Autism is just a

symptom, and probably most kids have a different mix of insults that

caused these symptoms. For some kids it could be undiagnosed celiac

disease, for others it could be heavy metals, others it could be viral

issues. I think that would explain better the reason why some kids

respond well to certain interventions when others don't. The studies on

secretin are a good example of this issue.

I'm not trying to muck up the waters here. We actually use the yogurt

with no problems. SCD has been good for us and been helpful in clearing

up some residual ASD symptoms for my 6 year old. Unfourtunately, my 3 yo

NT child, who is the primary reason for undertaking this diet due to

" poopy problems " is not moving along as well as I'd hoped. I think he

has worse gut problems than I'd thought and we will try to get him in to

a GI specialist this summer.

I do think its good to keep in perspective though that we are likely to

hear mostly from the parents that are successfully using SCD.

Becky

mom to Noah (6, HFA) and (3, NT)

May 4, 2006

Becky, you said:

>>>This is likely the case for several. However there doesn't seem to be