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We have just completed our first two HBOT sessions. So far, Tom is

sleeping MUCH better than normal (11 and 10 hours a night,

respectively, with only one waking per night, rather than 8 or 9

hours with many wakings). I hope this indicates a reduction in his

GI inflammation, which is our highest hope for the HBOT therapy.

We are excited to be doing HBOT! It seems to be a potentially

promising therapy for gut inflammation and brain inflammation.

Suzanne

>

> I am the Clinic Director for a clinic in Texas that specializes in

the treatment of brain injury with hyperbaric oxygen therapy.

Typically the protocol for brain injury (which includes autism) will

call for 40 treatments. I have seen some autistic patients do very

well with it but perhaps stopping at 20 treatments didn't allow the

HBO to fully do its job.

>

> I heard a doctor once say that when you are remodeling a house,

things get pretty ugly before they get better. He said you tear

down walls, rip up flooring, sheetrock - and then you begin cleaning

up before you actually lay tile floors, paint and wallpaper etc...

He said that the construction process can be messy but when you are

done, it never looks the same. He related the whole thing to my son

and how sometimes in order to get better, you might see a temporary

worsening of things.

>

> It sounds like you may have had some of that going on. Each child

and each brain injury are different, so it is hard to say what was

really going on for sure right now. Blessings, Tammy

>

> Message: 21

> Date: Tue, 11 Apr 2006 21:36:51 -0400

>

> Subject: Re: Re: OT: dilated pupils

>

> It sounds like the HBOT did some " chelating " of sorts (which is

one of the things that it is supposed to help with as well as

killing bad bacteria in the gut . . . maybe why your son

was " yeasty " for a time . . it could have been " die-off). It does

sound like you have more metals in there, and only you can decide

what is the best course of action or maybe " non-action " concerning

that.

>

> Apparently, though, this adjustment in the pupils can happen with

even just a little bit of " metals moving. " My son, , is not

chelating in the true sense. He is using PCA-RX spray to pull his

metals. It is not a true chelator, but is showing a lot of promise

as a low or no-risk way to detox (it doesn't pull out the minerals,

but does pull out the metals quite well in some individuals).

Anyway, has only been using this spray a few weeks, and he is

no where near his full dosage. However, Dr. Megson could already

see some improvement in his pupils' reactions to light last week at

our appointment. She seemed very pleased with his progress.

>

> I hope our experience gives you a little something to go on. I am

sorry that you didn't see more progress with your HBOT treatments.

I don't have the answer to that one since it is so new and everyone

is just figuring out where this fits into the spectrum picture. It

could be that your son needs more dives. And it could be that his

symptoms were a result of the " die-off " that is supposed to occur.

And, also, it seems apparent that you stirred up some metals without

getting them all out. The symptoms could be a result of the

remaining metals redistributing themselves in his system again.

Just some guesses . . . I certainly am no doctor.

>

> Good luck in your continued journey!

>

> Jeni Lynn (gastrointestinal problems)

> SCD 2 months

> mom to Margeaux, 6 yr. (add, gastrointestinal problems, heavy

metal toxicity)

> , 3 yr. (risk for add, gastrointestinal problems, heavy

metal toxicity)

> Elle, 18 mo. (leaky gut, eczema, heavy metal toxicity)

> SCD 4 months

> Re: OT: dilated pupils

>

>

> I have to chime in on the topic of dialated pupils, because we

have had a weird

> experience with this issue. No one takes this experience

seriously, but as his mother

> who looks into his eyes everyday, I notice a change.

>

> My son always had very large pupils. This seems to be related to

if he was actually

> focusing on something or not. Was he staring or actually

looking.

>

> In spite of this, he has always been a very high functioning

child. We have done diet,

> supplements, ABA, Methyl B12 injections etc..... Now at age 5,

he is caught up (even

> ahead) in many developmental areas. He lags behind in motor

skills and has sensory

> issues. I know he was mercury damaged, but we have never

chelated. ly, I have

> been to afraid of the regression that usually takes place. He

has done so well, I just

> can't imagine watching him go backwards.

>

> Anyway, the weird part about dialated pupils .... In January

right after he turned Five,

> we went to a Hyperbarics Center in another state, and did

20 " dives " in 2 weeks. Now

> I don't think that was the best way to do it, because he seemed

to actually be less

> focused in general, got a little yeasty, and diarhea. (I did

teach him to play chess

> while we were in the chamber.) Anyway, after we had been home

for a week or so. I

> noticed that his pupils seem to be more normal size, and reacted

to changes in light

> more normally. He still has sensory issues -- maybe more than

before. His motor

> skills have not really improved. I believe we are still dealing

with metals. He is

> continuing to learn very well, and is starting to read a little.

>

> I just don't know what to think about this experience. Any ideas?

> Amy

>

>

>

>

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