Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 I am the mom of a severely brain injured little boy who is now 8 years old. He has epilepsy (5 different types of seizures), cortical blindness, spastic quad CP, reflux with high risk for aspiration pneumonia, feeding tube, etc... He has been on the ketogenic diet for 4 years (he was weaned from it 3 years ago)and has been tried and failed on all available seizure medications. He has 30-150 seizures a day. I finally got the help of our neurologist and dietician to work with me to give him some real food pureed through his tube. He is still on some formula. It is called Neocate Junior. I am interested in getting him on the SCD but wondering if there is anyone else here that has a child with similar issues? Thanks so much for any help or comments that you could share. Sincerely, Tammy Quote Link to comment Share on other sites More sharing options...
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