Guest guest Posted November 1, 2003 Report Share Posted November 1, 2003 Hi My name is Debbie and I just recently found this site. I am sorry to see so many people suffer with the same problems I have day after day but at the same time it's good to know I'm not the only one. I was diagnosed with CP about 6 years ago but could never find much info about it. Most of what I found on the internet was a discription of symptoms and a list of tests. When I started reading here I was amazed at how many people had the same symptoms and problems with docs I have had. When I was first diagnosed we lived in a little town in Idaho and no one but my doc had even heard of pancreatitis. A couple of years ago we moved back to Kentucky to be near my pancreatic specialist in Louisville. But, even he didn't give me much info about my illness. So, I'm glad to have found this site. I have read that some of you have been on TPN and I was wondering how long you are usually on it. Last summer my doctor removed 80% of my pancreas which was supposed to stop all the pain and it did for about 6 monthes. Then the pain and everything came back. I have been in the hospital at least a week out of every month since March. So, now my doc has decided to try the stent thing again for a few monthes. He has also had me on TPN this time for about 2 monthes with at least 2 more weeks to go. But, even with this and a liquid diet I was in the hospital for a week. I was just wondering if there is a problem with staying on TPN for so long. I'm getting tired of having a tube hanging out of my arm or chest all the time. I even had to have a port-a-cath put in because all my veins are shot. Maybe if I could just have a couple of M & M's I could handle it better. At least I can have fat free chocolate pudding! I would appreciate any thing you can tell me about the TPN or any other survival tips. Thanks. Debbie Stagg Quote Link to comment Share on other sites More sharing options...
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