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Just found this site- question about TPN

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Hi

My name is Debbie and I just recently found this site. I am sorry

to see so many people suffer with the same problems I have day after

day but at the same time it's good to know I'm not the only one. I

was diagnosed with CP about 6 years ago but could never find much

info about it. Most of what I found on the internet was a

discription of symptoms and a list of tests. When I started reading

here I was amazed at how many people had the same symptoms and

problems with docs I have had. When I was first diagnosed we lived

in a little town in Idaho and no one but my doc had even heard of

pancreatitis. A couple of years ago we moved back to Kentucky to be

near my pancreatic specialist in Louisville. But, even he didn't

give me much info about my illness. So, I'm glad to have found this

site. I have read that some of you have been on TPN and I was

wondering how long you are usually on it. Last summer my doctor

removed 80% of my pancreas which was supposed to stop all the pain

and it did for about 6 monthes. Then the pain and everything came

back. I have been in the hospital at least a week out of every month

since March. So, now my doc has decided to try the stent thing

again for a few monthes. He has also had me on TPN this time for

about 2 monthes with at least 2 more weeks to go. But, even with

this and a liquid diet I was in the hospital for a week. I was just

wondering if there is a problem with staying on TPN for so long.

I'm getting tired of having a tube hanging out of my arm or chest

all the time. I even had to have a port-a-cath put in because all

my veins are shot. Maybe if I could just have a couple of M & M's I

could handle it better. :) At least I can have fat free chocolate

pudding! I would appreciate any thing you can tell me about the

TPN or any other survival tips. Thanks.

Debbie Stagg

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