Long term expectations after TP-ICT

[Guest guest]

Hello all,

I am scheduled to see my GI specialist in July and I am trying to

gather as much data as possible before seeing him. I am going, to see

about a total pancreatectomy with auto islet cell transplant. My

questions to you are the following. What are the long term

expectations following the surgery? I am only 26. I have had

pancreatitis since around age 10. It has been chronic the last 5

years. If I had the surgery, at this age, those islets would have to

last me a long time. I know there are no good answers as the surgery

hasn't been done long enough to know. I would like to know from those

of you who have had it done what if any long term expectations were

you given? Also what if any long term complications aside from

diabetes were mentioned?

For the last 4-5 years I have had CP bad enough to prevent me from

working. I can not take care of my little girls the way I would like

to, and it is a tremendous taxation on my marriage. My house hasn't

been tidy for so long I have forgotten what that was like. I am

willing to take risks for getting my life to belong to me again, I

would just like to make the most informed decision I can.

Love and hope,

Keri Beck RN

Mattoon, IL