PM

[Guest guest]

Hi Everybody: I hope everyone is hanging in there dealing with all our

different pain and symptoms. I am recovering from an ERCP done on June 9,

where I also had a perforration in my duodenum. Dr. Kalloo felt confident

that by following a strict low fat die, no smoking or drinking, I should be

pain free by now. I am getting to the end of my prescriptions (60 mg. of

Oxycontin 3 times a day and oxycodone for breakthrough).

I decided after two years with my current pain management doctor, to make a

change. I never felt that he took me seriously, or that I could count on

him to handle my pain not just as a symptom, but as a part of a whole

illness. This has not only affected me physically, but mentally and

spiritually. I am trying to keep everything under control, but it's a day

by day thing. I took a leap of faith to change doctors, not knowing

anything about this new doctor, except that I was referred to him by my

family doctor. I trust him, and hope that he is not just referring me to a

doctor he doesn't know anything about.

I am so scared that he will take me off what I am currently taking, and

maybe having to go through withdrawal. I have had to do that a couple of

times, and it's not pleasant. But I also want to find out what my level of

pain is without the medicine, but I am scared. I hope he will be able to

guide me though getting off the high level of medicine without going cold

turkey.

I have the appointment on Wednesday, and have to travel an hour to his

office. The local doctor was the one I terminated. These are my only two

choices in this area for PM. I would appreciate anyone's input on the way

to approach this new doctor, questions to ask to make sure he understands

cp, and any support from the group. I am scared of the unknown and knowing

I only have barely enough medication to get me through Wednesday. Sorry to

just kind of ramble on, but I really need some input and support right now.

My husband is wonderful, but it's hard, very hard for him to understand.

Only living with this gives you the insight into maybe what I am feeling.

Thanks for taking the time to read this.

Hanging in there...hope you are too!

Robin

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