Re : I'm new to this.....long

[Guest guest]

Hello Marcy,

I'm sorry you are not well.

You can access useful information on hereditary pancreatitis in the

Top5+5 section of this site.

It is possible to have genetic testing done to see if one has HP

(I'm currently having tests). Pittsburgh is a big US centre for

research into HP and genetic testing. You can also access their

website but I haven't got the address handy. I'll post it later. My

understanding is that the tests are good for around 80% of cases of

HP but they haven't yet discovered all the possible genetic

mutations. They are still working on it. I am not a doctor and have

no medical or scientific qualifications. I wouldn't want to mislead

anyone but that is my understanding from what I have been told by my

specialists and the geneticists I have seen. It's probably worth

talking to your doctor about this and having a referral to a

pancreatic specialist who will know about HP, the testing etc. It's

all too easy to jump to false conclusions, of course, and a little

knowledge can be a dangerous thing. I know this myself as I keep

reading more and more information and it can be confusing or

worrying. It's a very complex issue so it's probably best just

to try to get to talk to a specialist.

I'm glad you're feeling better. Keep well.

Fliss