Went to my SSI Hearing....NEED ANYONES HELP!

[Guest guest]

Hello Everyone,

Sorry I've been away for so long. I do wish I could spend much more

time here, but with these 3 teenage girls I have at home, its just

not happening anytime soon.......maybe when they are safe & sound

tuck away in college in a few years, that makes me sad! I don't want

them to go!

OK, now, for the reason why I'm bothering all you fine people

tonight.........I went to my SSI hearing on Tuesday. My mom went

with me, so she could help me hear what was said, I have had hearing

loss since birth, (just now getting hearing aids, and they are on

order) BUT they wouldn't let her help me. They made her " sit in the

corner & keep your big fat mouth shut " is what she had to do.

Anyways, there was the judge, a doctor who was there as a medial

expert & an occupational expert. First the judge ask me all about my

health problems. Then the doctor spoke. He said after he looked

through my file he has came to the conclusion that I DON'T have

chronic pancreatitis at all. That whats wrong with me is..........

(NOW THIS IS WHERE I NEED YOUR ADVISE & GUIDANCE EVERYONE).....that

my blood work " never " shows an elevation of the pancreas enzymes and

that one of my blood test are " always " elevated that has to do with...

(????) some kind of " fatty acid " that I was born with, he said the

name, but can't remember what it was, and that is is aggravated by

the premarin that I take. He said that whatever the fatty acid thing

is and the premarin is a bad combination and that he feels thats

whats wrong with me, not chronic pancreatitis. When I explain to him

what Dr. Lehman & my local GI doctor says about my pancreas being a

burn-out, then he just kinda shrugged it off. I need anyones help

who may know what the " fatty acid " thing that I was born with is, and

what anyone knows about the association with it & premarin. And

then, you'll never believe this one!, the doctor told the judge that

in my file it states that during one of my hospital stays here in

Springfield that they had me on the " psych unit on a suidide watch "

for 2 days. I told him, no, that never happened to me, and he said,

yes it did, its documented in your file, and I said, no it didn't, he

said, you don't remember? well, it was only 2 days, then they put

you back on the floor. When I ask him when it was, he looked at the

hand written notes he had written, and changed the subject. He told

the judge that I'm usually hospitalized up to 9 times in a year, and

then the judge ask me how many times in the last year, and when I

told him none, because I have the med-a-port & I do the IV

rehydration & IV meds at home because my husband divorced me because

of being sick so much & in the hospital so much, now I can be home

with my girls & not worry about where they will stay if I am in the

hospital. He smiled at me then. And then he ask the doctor if he

thought I would be able to hold a job, the doctor kinda hesitated &

thought for a sec, then said, probably not because no one would hire

me because I'd be off sick so much. Then this whimpy occupational

expert guy went over my work history, then read back to the judge

stuff like, semi-skilled, medium importance, solitare history, stuff

like that. Then the judge said that was all, he would send me a

consideration letter " as soon as possible " and the whimpy occup. guy

looked at me & smiled & said, " good luck Ms. Lawson " and I told him

Thank you, then looked at the judge & told him thank you, and the

judge smiled & winked at me & said, your welcome. My mom thinks it

went well, I was in some serious pain because I didn't take my pain

meds that morn because they make me drowsey and you could tell. The

judge even ask me why I was restless & holding my right side. Mom

said that I didn't hesitated on any questions & I smiled very little,

but at the right time. She thinks they will grant it in my favor.

We'll see.

So, to make a long, very long, story short......does anyone know

anything about the " fatty acid " thing that he said I was born with,

and the association with premarin? I'll be forever thankful to

anyone & everyone who will help me out on this one.

And also, does anyone know how long it takes to get your

consideration letter or any back money they may send? I'm just

courious because its been a very, very long 2 years & 2 months & 2

appeals since I started down this very, very long road. Thanks alot

evryone! And I hope you are all doing well these days!

Lots of Hugs,