Y'all are invited to my pity party (sigh)

[Guest guest]

Hi y'all,

It's been a while since I've updated what's been going on in my

white house on Nanny Creek and the May River. My pseudocysts

have been arguing at each other quite a bit these last few days

and I'm suffering for their bad temperments. So I've been back

on my pain meds 24/7, and I hate that.

I saw my GI last week to find out what he and the Savannah

radiologist had to say about that big mysterious pseudocyst that

shows one day and doesn't the next. My GI finally admitted " that

there is quite a mess in there " , but wouldn't elaborate. He also

wouldn't let me have the CT-films back, he said he wanted to

take them to yet another specialist for a consultation, and that I

would need another scan in four weeks. Since there's only been

off and on pain for several weeks, and I have some plans for the

next few weeks that don't include doctors, hospitals or any more

procedures, this delay was fine with me. But, I will say if the pain

continues like it's been these last couple of days I won't be able

to delay getting back in to the doctor. I need to get over to

Savannah this week, anyway, to get all new pain med

prescriptions.

My BG's have been living up to their " brittle " diagnosis and giving

me some hairy moments, too. Going up into the high 400's and

then dropping to below 50 within a day's time, so that has kept

me close to home and spending much of my time testing,

testing, testing. It's discouraging because they can go along so

well for so many days and I start to relax, and then suddenly they

go haywire again. Consequently, because of the pain and the

crazy BG's, I've not been getting any reasonable sleep

I took my 240+ pages of SSDI documentation to the SSDI office

Tuesday. There were 12 chairs in the waiting room, and 16

people in the room, all with appointments, and one man sitting

behind the screen interviewing. I didn't have an appointment, I

just thought hand delivering that much paperwork would be

easier than trying to mail it because we've had horrible problems

with our local US post office. The Post Master and some of the

employees were arrested two months ago for throwing

undelivered mail in the dumpster, so I've mistrusted sending

anything important out of that facility ever since.

Anyway, I don't look forward to having to go to the SSDI even

WITH an appointment, if that's what the line is like. They even

had a security officer there in the room to monitor the people

waiting for their appointments.....really weird place. Since I've

given them all the paperwork they normally would have had to

send off for, all my doctor's records, all my hospital records, and

all my lab reports, plus letters from my doctors and personal

friends, I wonder how long this processing will take? Anyone

with any ideas? There isn't anything left that they have to send

away for.

Sorry to sound so glum tonight. It's just one of those nights

(days) when it all seems to be going the wrong way and I'm sick

and tired of the pain, the lack of sleep and feeling this way.....y'all

know how that goes. Thanks for letting me throw my own pity

party, surely tomorrow will be better.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SE & SW Regional Rep.

PAI, Intl.

Note: All comments or advice are strictly personal opinion, and

should not be substituted for professional medical advice.