Re: Xylitol Inhalations and Aloe Vera

[Guest guest]

In a message dated 2/27/2003 1:13:49 PM Eastern Standard Time,

walllucas@... writes:

> http://groups.yahoo.com/group/cfparents/files/PHOTOS/mi%20triciclo%

> 20y%20%20yo.jpg

>

>

Great Pix!

Rosemary from New York with 3 children with CF -

they are 12.5, 10, 6......

I coined the phrase " BREATHE DAMMIT " ; we have a dog we named -are you ready

for this - TOBI after their medication!!! At least it wasn't albuterol or

Coly...

[Guest guest]

Lucas,

I was about to refer you to the crataegus list at

http://groups.yahoo.com/group/crataegus

and Sharktank at

http://groups.yahoo.com/group/sharktank

when I saw that you had already asked your questions there. I

figured I would send this anyway, so that others would know the links

to the lists that concentrate on alternative therapies for cf.

I noticed that you did get some good responses on the crataegus

list. Of course, you should run anything new by your doctor before

trying it so he can keep track of progress or pitfalls of new

treatments.

~

mommy of 3, 1 with cf

and now (finally) a Mannatech Associate

> Hello to all,

>

> I am always reading and not ofen writting, but I have a couple of

> questions today.

> I would like to know if it is possible to make inhalations of

> xylitol using the same product that is sold for nose washing (Xlear

> I think is the name). In that case, how do you implement the

> inhalations? I know it is not the same as nebulizations, is there

> any special gadget to do it? is it a homemade procedure? thanks for

> let me know.

> I would like to start to reinforce Santiago's health because he has

> been out of lung's infections since October 2002. We don't know

how,

> but he broke an " every two month " cycle of infections.

>

> My second question is where to buy Aloe Vera juice, I would like to

> give him this as well, he has been with an average of two poo-poos

a

> day even when we (with phisician's recomendation) increased enzymes

> (Creon 10.000) from 3.5 to 4.0 per big meal.

>

> Finally, I posted a Santiago's picture, it is at:

> http://groups.yahoo.com/group/cfparents/files/PHOTOS/mi%20triciclo%

> 20y%20%20yo.jpg

>

> Thank you very much in advance.

>

> Love to all our CFs kids.

>

> Best regards.

>

> Lucas.

>

> Santiago's father.

> burg, VA.