To Myrna

[Guest guest]

Dear Myrna,

Since you were NPO for three months, did your pseudocyst

resolve? This is known as one method of getting pseudocysts

to resolve, by putting the patient on NPO for an extended period.

I am curious to hear what kind of tests, or imaging studies they

did on you to determine the status of your pseudocyst. If that

pseudocyst has increased or filled up again, it could be the

cause of any new or increasing pain that you are feeling. This

has happened to me before, that's why I ask.

Also curious to know why you stopped taking your pancreatic

enzymes. If you show any signs of pancreatic insufficiency, the

enzymes are beneficial to you. As you said, you did fine for a

year while on them, then stopped and within a few weeks had an

attack. Are you taking them now?

There are only a few doctors I've ever heard of that do not

encourage the necessity of a low fat diet for persons with chronic

pancreatitis. It seems you found one of them. Is this doctor a

Gastroenterologist? Have you kept track of what kinds of foods

you've been eating, avoided all alcohol and been able to

determine anything that has triggered your pain episodes?

You should not have " to figure this out for yourself " . In my

opinion, it sounds like you need a more aggressive and

experienced gastroenterology specialist. IMHO, this doctor

you've been seeing isn't doing anything to help you, and you

need to find one that will.

We're here to listen and to help in any way we can. If you can fill

in some of the blanks and answer my questions, perhaps we

can figure out more about your situation and find some solutions

for you.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC & SE Regional Rep

PAI, Intl.

Note: Comments or advice are personal opinion only, and

should not be substituted for professional medical consultation.

>>I spent last June, July and Aug in the hospital most of the time.

I had a syst and was allowed home a little on home health but

was not able toeat, by mouth for those three months. I have had

5 attacks and had my gall bladder out.

My doctor does not seem to feel, personally, what I eat makes

any difference

I went a year with out any problems and was on ensigns for that

year. I went off for about three weeks, feeling I was better and

then had another attack. After that I took some pills for some pain

in my leg and had another attack.

I am sure starting to feel, I've got to figure this out for myself

Myrna