Guest guest Posted February 5, 2003 Report Share Posted February 5, 2003 Hi everyone, Well today we met Dr Landon for the first time. I was ready w/ my list in hand. (I don't start my new job till Monday so I didn't have to send the hubby-wish I had though because Wyatt and Hunter were awful!!) I really liked him. He seems to be very cutting edge and up to date on new things in the CF world. Many years ago he was asked to go to Harvard and do a study on Prednisone and CF. He said at first there was a big difference in the Placebo group and Pred group but after about two years the differences weren't so easy to find and he felt the Prednisone wasn't that effective anymore. I know this because Wyatt is on Prednisone so he told me. He immediately took us off of it and is switching us to....(drumroll) zithromax. I started laughing because I learned of it from all of you and that was on the top of my list of questions to ask him (what is it..are we candidates for it..) To back up one of the first things he asked me was if I keep up on new CF info and if I'm an online girl. I told him yes I had become one in the past 6 months or so. I told him of this group. He even mentioned Cystic-L and of course asked if I frequently go to cff.org to see new press releases and info. For Danelle, who asked about the VEST...he was saying his group or people he's involved w/ kind of " created " a VEST for infants and the company is working on making it into reality now. He said he could get me more information so first go to Advanced Respiratories website to get more information on the VEST. Also ask your clinic about it. They should know the measurements you need to have to fit in one but I think at 22 months old you probably are good for one. I have a friend who's daughter was very petite and around the 2 year old mark and she got a VEST. anyways, if after you get your info and your child doesn't fit one let me know and I'll ask my doc about the info he has for you. So most of clinic was normal clinic stuff. He did a throat culture and PFT's then an albuterol treatment then more PFT's. Wyatt was such a joy through all of this. He is such a dramatic child. I wanted to wring his little neck. So I think Dr Landon is going to turn out just fine. He is very open to new information and treatments and seems to be somehow involved in that all anyways so I look forward to working w/ him welcome to the group by the way...didn't want to forget to say hi Christy Mom of Wyatt 7wcf and Hunter 2.5 wocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 YES, Nothing but great reports on him!!! yeah. have a great week LOVE & HUGS, GRDMBEV Wyatt's new doctor Hi everyone, Well today we met Dr Landon for the first time. I was ready w/ my list in hand. (I don't start my new job till Monday so I didn't have to send the hubby-wish I had though because Wyatt and Hunter were awful!!) I really liked him. He seems to be very cutting edge and up to date on new things in the CF world. Many years ago he was asked to go to Harvard and do a study on Prednisone and CF. He said at first there was a big difference in the Placebo group and Pred group but after about two years the differences weren't so easy to find and he felt the Prednisone wasn't that effective anymore. I know this because Wyatt is on Prednisone so he told me. He immediately took us off of it and is switching us to....(drumroll) zithromax. I started laughing because I learned of it from all of you and that was on the top of my list of questions to ask him (what is it..are we candidates for it..) To back up one of the first things he asked me was if I keep up on new CF info and if I'm an online girl. I told him yes I had become one in the past 6 months or so. I told him of this group. He even mentioned Cystic-L and of course asked if I frequently go to cff.org to see new press releases and info. For Danelle, who asked about the VEST...he was saying his group or people he's involved w/ kind of " created " a VEST for infants and the company is working on making it into reality now. He said he could get me more information so first go to Advanced Respiratories website to get more information on the VEST. Also ask your clinic about it. They should know the measurements you need to have to fit in one but I think at 22 months old you probably are good for one. I have a friend who's daughter was very petite and around the 2 year old mark and she got a VEST. anyways, if after you get your info and your child doesn't fit one let me know and I'll ask my doc about the info he has for you. So most of clinic was normal clinic stuff. He did a throat culture and PFT's then an albuterol treatment then more PFT's. Wyatt was such a joy through all of this. He is such a dramatic child. I wanted to wring his little neck. So I think Dr Landon is going to turn out just fine. He is very open to new information and treatments and seems to be somehow involved in that all anyways so I look forward to working w/ him welcome to the group by the way...didn't want to forget to say hi Christy Mom of Wyatt 7wcf and Hunter 2.5 wocf ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2003 Report Share Posted February 8, 2003 I'm glad to hear that you liked Dr. Landon. We hope to see him soon. At my son's next appointment with his ped we are going to ask for a referral to see Dr. Landon. Did you get a chance to ask about the infection control at the clinic? Do patients wear masks, etc...? I hope the Zithromax works out well for you. I have read about some really good results with it. My older son used it for an ear infection last year and it was a bit hard on his stomach. Best Wishes A. from Southern CA, mom to Carl 6 no/cf and 2 1/2 w/cf. > Hi everyone, > Well today we met Dr Landon for the first time. I was ready > w/ my list in hand. (I don't start my new job till Monday so I didn't > have to send the hubby-wish I had though because Wyatt and Hunter > were awful!!) I really liked him. He seems to be very cutting edge > and up to date on new things in the CF world. Many years ago he was > asked to go to Harvard and do a study on Prednisone and CF. He said > at first there was a big difference in the Placebo group and Pred > group but after about two years the differences weren't so easy to > find and he felt the Prednisone wasn't that effective anymore. > I know this because Wyatt is on Prednisone so he told me. He > immediately took us off of it and is switching us to....(drumroll) > zithromax. I started laughing because I learned of it from all of you > and that was on the top of my list of questions to ask him (what is > it..are we candidates for it..) > To back up one of the first things he asked me was if I keep up on > new CF info and if I'm an online girl. I told him yes I had become > one in the past 6 months or so. I told him of this group. He even > mentioned Cystic-L and of course asked if I frequently go to cff.org > to see new press releases and info. > For Danelle, who asked about the VEST...he was saying his group or > people he's involved w/ kind of " created " a VEST for infants and the > company is working on making it into reality now. He said he could > get me more information so first go to Advanced Respiratories website > to get more information on the VEST. Also ask your clinic about it. > They should know the measurements you need to have to fit in one but > I think at 22 months old you probably are good for one. I have a > friend who's daughter was very petite and around the 2 year old mark > and she got a VEST. anyways, if after you get your info and your > child doesn't fit one let me know and I'll ask my doc about the info > he has for you. > So most of clinic was normal clinic stuff. He did a throat > culture and PFT's then an albuterol treatment then more PFT's. Wyatt > was such a joy through all of this. He is such a dramatic child. I > wanted to wring his little neck. > So I think Dr Landon is going to turn out just fine. He is very > open to new information and treatments and seems to be somehow > involved in that all anyways so I look forward to working w/ him > welcome to the group by the way...didn't want to forget to > say hi > Christy Mom of Wyatt 7wcf and Hunter 2.5 wocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 Thank You!! I will find out what Chas's docs say. Especially now that my insurance won't cover anymore nursing visits!! I feel like now I have to step up and become more educated and more secure in recognizing any health issues for my son. le Wyatt's new doctor Hi everyone, Well today we met Dr Landon for the first time. I was ready w/ my list in hand. (I don't start my new job till Monday so I didn't have to send the hubby-wish I had though because Wyatt and Hunter were awful!!) I really liked him. He seems to be very cutting edge and up to date on new things in the CF world. Many years ago he was asked to go to Harvard and do a study on Prednisone and CF. He said at first there was a big difference in the Placebo group and Pred group but after about two years the differences weren't so easy to find and he felt the Prednisone wasn't that effective anymore. I know this because Wyatt is on Prednisone so he told me. He immediately took us off of it and is switching us to....(drumroll) zithromax. I started laughing because I learned of it from all of you and that was on the top of my list of questions to ask him (what is it..are we candidates for it..) To back up one of the first things he asked me was if I keep up on new CF info and if I'm an online girl. I told him yes I had become one in the past 6 months or so. I told him of this group. He even mentioned Cystic-L and of course asked if I frequently go to cff.org to see new press releases and info. For Danelle, who asked about the VEST...he was saying his group or people he's involved w/ kind of " created " a VEST for infants and the company is working on making it into reality now. He said he could get me more information so first go to Advanced Respiratories website to get more information on the VEST. Also ask your clinic about it. They should know the measurements you need to have to fit in one but I think at 22 months old you probably are good for one. I have a friend who's daughter was very petite and around the 2 year old mark and she got a VEST. anyways, if after you get your info and your child doesn't fit one let me know and I'll ask my doc about the info he has for you. So most of clinic was normal clinic stuff. He did a throat culture and PFT's then an albuterol treatment then more PFT's. Wyatt was such a joy through all of this. He is such a dramatic child. I wanted to wring his little neck. So I think Dr Landon is going to turn out just fine. He is very open to new information and treatments and seems to be somehow involved in that all anyways so I look forward to working w/ him welcome to the group by the way...didn't want to forget to say hi Christy Mom of Wyatt 7wcf and Hunter 2.5 wocf Quote Link to comment Share on other sites More sharing options...
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