Pari neb treatments

[Guest guest]

Hi everyone,

As usual, I read most of your e-mails on a regular basis but post

infrequently.

First of all, a big Thank You to Grandma Bev for all of the cf

resources you sent to me.

I am a foster Mom to Shaelin, a 2 yo wcf who my husband and I are

hoping to adopt. He has actually been doing fairly well since his

sinus surgery back in November and since then has cultured negative

for pseudomonas which has been great as he had been on TOBI on

alternate months for more than one year. It has been a great break!

I do have a couple of questions. Shailin has recently been started

on Pulmozyme and uses the Pari Nebulizer. When I used it for the

TOBI, I removed the blue valve from the top of the nebulizer per

company recommendation, as the TOBI was taking over 50 minutes. The

nebulizer I got with the pulmozyme has a blue valve on the cap of the

cup in addition to a y-connecter with an additional valve, which then

attaches to the mask. Is there a reason why the y-connector is used

with the pulmozyme and not the other meds and should I also be using

the blue valve that is in the cap.

For all of those who are new, you have joined a great group and will

find lots of support and valuable information by being part of it.

Jeanne (foster Mom to Shaelin, 2 yo wcf)