Re: need info on national volunteer conference in Denver in April

[Guest guest]

It sounds fun, but I have never heard of it. And I live in Colorado!

Kinda odd, because we are very involved with the CFF here in Colorado

Springs, so you would think we'd have known about it.

Will they pay for your flight, lodging, etc.? If so, I would go.

Can't hurt! You deserve a mini-vacation. And my husband and I'll

drive up to meet ya for lunch or something!

Wish I could offer more info. I know one of the staff members up

there, but she is not in the office at this hour. Sorry I didn't get

your email sooner. I'd be glad to ask her opinion (she has a adult

daughter with cf) but you probably have to let them know before I can

reach her.

Lenora

>HI everyone!

>

>Well I was just invited to go to the National Conference (Volunteer

>awards banquet) for the Cf Foundation in Denver Colorado this April.

>Does anyone out there know anything about it? I know it is April 25

>and 26 but do not know the itinerary or even how good these

>conferences usually are. My husband and I have to decide by Monday

>(they just called today) if we want to go. Any help would be

>appreciated! It is a long way from Michigan and we want to make sure

>it would be worth the trip!

>

>

>By the way..we are still batteling Hannah's cough but she has not

>gotten any worse and actually seems to be more full of energy...We go

>back to our clinic Tuesday...we are hoping they do not need to admit

>her!

>

>

>

[Guest guest]

Lenora, I wonder if this is the annual CFF Board Meeting?

In 1999, the CFF decided to take their annual board meeting on the

road instead of always holding it in Baltimore. It was their way of

trying to reach out in hopes of recovering the bad reputation they'd

gained as not being accessible or meeting the needs of everyone.

So the 1999 meeting was held in Chicago at a downtown hotel. Of

course, the board meeting was closed to everyone but board members,

but they had an invitation-only cocktail and dinner the night before,

along with an awards ceremony. Directors of CF chapters across the US

attended, as did people across the US who received awards recognizing

their high-dollar fundraising efforts.

I flew to Chicago from Oklahoma as the guest of my friends, Kerry and

Ed Sheehan; they received a plaque for their work on Great Strides.

Kerry is a human dynamo in getting cash and in-kind donations for the

event she puts together during the Great Strides walk.

They also introduced a few well-known researchers and biotech CEO's,

and explained their therapeutics development program, etc.

Frand Deford was still CFF Chairman of the Board at the time, but he

stepped down at that meeting, gave his farewell speech and the new

person (can't remember her name) was introduced.

The following year, 2000, they planned holding the board meeting back

in Baltimore because it was their 50th anniversary or something, but

after that were going to resume holding the annual board meeting in

different cities. I remember one of the cities was supposed to be

Seattle, so it doesn't surprise me that Denver would show up.

Oh, Lenora -- someone told me yesterday that she saw an ad on TV

announcing CF Awareness Week next week in Kentucky. What's up with

that? Have you heard anything on this?

I wonder if the CFF is still selling those " heart on your sleeve pins "

around Valentine's Day and maybe someone is promoting CF awareness

with it?

Kim

> It sounds fun, but I have never heard of it. And I live in Colorado!

> Kinda odd, because we are very involved with the CFF here in

Colorado

> Springs, so you would think we'd have known about it.

> Will they pay for your flight, lodging, etc.? If so, I would go.

> Can't hurt! You deserve a mini-vacation. And my husband and I'll

> drive up to meet ya for lunch or something!

> Wish I could offer more info. I know one of the staff members up

> there, but she is not in the office at this hour. Sorry I didn't get

> your email sooner. I'd be glad to ask her opinion (she has a adult

> daughter with cf) but you probably have to let them know before I

can

> reach her.

> Lenora

>

>

>

> >HI everyone!

> >

> >Well I was just invited to go to the National Conference (Volunteer

> >awards banquet) for the Cf Foundation in Denver Colorado this

April.

> >Does anyone out there know anything about it? I know it is April

25

> >and 26 but do not know the itinerary or even how good these

> >conferences usually are. My husband and I have to decide by Monday

> >(they just called today) if we want to go. Any help would be

> >appreciated! It is a long way from Michigan and we want to make

sure

> >it would be worth the trip!

> >

> >

> >By the way..we are still batteling Hannah's cough but she has not

> >gotten any worse and actually seems to be more full of energy...We

go

> >back to our clinic Tuesday...we are hoping they do not need to

admit

> >her!

> >

> >

> >

[Guest guest]

>Lenora, I wonder if this is the annual CFF Board Meeting?

Maybe.

>Oh, Lenora -- someone told me yesterday that she saw an ad on TV

>announcing CF Awareness Week next week in Kentucky. What's up with

>that? Have you heard anything on this?

>

>I wonder if the CFF is still selling those " heart on your sleeve pins "

>around Valentine's Day and maybe someone is promoting CF awareness

>with it?

I have not heard anything from Kentucky. I did a search on Google,

though, and found this!

http://www.cff.org/legislative_action/legislative_activities_and_updates.cfm?ID=\

334

I did not even know this was being done!

L

>

>Kim

>

>

>

>> It sounds fun, but I have never heard of it. And I live in Colorado!

>> Kinda odd, because we are very involved with the CFF here in

>Colorado

>> Springs, so you would think we'd have known about it.

>> Will they pay for your flight, lodging, etc.? If so, I would go.

>> Can't hurt! You deserve a mini-vacation. And my husband and I'll

>> drive up to meet ya for lunch or something!

>> Wish I could offer more info. I know one of the staff members up

>> there, but she is not in the office at this hour. Sorry I didn't get

>> your email sooner. I'd be glad to ask her opinion (she has a adult

>> daughter with cf) but you probably have to let them know before I

>can

>> reach her.

>> Lenora

>>

>>

>>

>> >HI everyone!

>> >

>> >Well I was just invited to go to the National Conference (Volunteer

>> >awards banquet) for the Cf Foundation in Denver Colorado this

>April.

>> >Does anyone out there know anything about it? I know it is April

>25

>> >and 26 but do not know the itinerary or even how good these

>> >conferences usually are. My husband and I have to decide by Monday

>> >(they just called today) if we want to go. Any help would be

>> >appreciated! It is a long way from Michigan and we want to make

>sure

>> >it would be worth the trip!

>> >

>> >

>> >By the way..we are still batteling Hannah's cough but she has not

>> >gotten any worse and actually seems to be more full of energy...We

>go

>> >back to our clinic Tuesday...we are hoping they do not need to

>admit

>> >her!

>> >

>> >

>> >

[Guest guest]

Lenora and ,

When I pulled up the page, the middle section was blank so I wasn't

sure what you (Lenora) were referring to. I clicked on a couple of the

sidebar topics. Were you talking about the PPA thing? If so, that

sounds like a perfect thing for Teddi Fine. Remember, she lives in the

area, was the speech writer for Donna Shalala of HHS, and is a former

DC lobbyist. I wonder if she knows about this?

Kim

> >> It sounds fun, but I have never heard of it. And I live in

Colorado!

> >> Kinda odd, because we are very involved with the CFF here in

> >Colorado

> >> Springs, so you would think we'd have known about it.

> >> Will they pay for your flight, lodging, etc.? If so, I would go.

> >> Can't hurt! You deserve a mini-vacation. And my husband and I'll

> >> drive up to meet ya for lunch or something!

> >> Wish I could offer more info. I know one of the staff members up

> >> there, but she is not in the office at this hour. Sorry I didn't

get

> >> your email sooner. I'd be glad to ask her opinion (she has a

adult

> >> daughter with cf) but you probably have to let them know before

I

> >can

> >> reach her.

> >> Lenora

> >>

> >>

> >>

> >> >HI everyone!

> >> >

> >> >Well I was just invited to go to the National Conference

(Volunteer

> >> >awards banquet) for the Cf Foundation in Denver Colorado this

> >April.

> >> >Does anyone out there know anything about it? I know it is

April

> >25

> >> >and 26 but do not know the itinerary or even how good these

> >> >conferences usually are. My husband and I have to decide by

Monday

> >> >(they just called today) if we want to go. Any help would be

> >> >appreciated! It is a long way from Michigan and we want to

make

> >sure

> >> >it would be worth the trip!

> >> >

> >> >

> >> >By the way..we are still batteling Hannah's cough but she has

not

> >> >gotten any worse and actually seems to be more full of

energy...We

> >go

> >> >back to our clinic Tuesday...we are hoping they do not need to

> >admit

> >> >her!

> >> >

> >> >

> >> >

[Guest guest]

Lenora and ,

When I pulled up the page, the middle section was blank so I wasn't

sure what you (Lenora) were referring to. I clicked on a couple of the

sidebar topics. Were you talking about the PPA thing? If so, that

sounds like a perfect thing for Teddi Fine. Remember, she lives in the

area, was the speech writer for Donna Shalala of HHS, and is a former

DC lobbyist. I wonder if she knows about this?

Kim

> >> It sounds fun, but I have never heard of it. And I live in

Colorado!

> >> Kinda odd, because we are very involved with the CFF here in

> >Colorado

> >> Springs, so you would think we'd have known about it.

> >> Will they pay for your flight, lodging, etc.? If so, I would go.

> >> Can't hurt! You deserve a mini-vacation. And my husband and I'll

> >> drive up to meet ya for lunch or something!

> >> Wish I could offer more info. I know one of the staff members up

> >> there, but she is not in the office at this hour. Sorry I didn't

get

> >> your email sooner. I'd be glad to ask her opinion (she has a

adult

> >> daughter with cf) but you probably have to let them know before

I

> >can

> >> reach her.

> >> Lenora

> >>

> >>

> >>

> >> >HI everyone!

> >> >

> >> >Well I was just invited to go to the National Conference

(Volunteer

> >> >awards banquet) for the Cf Foundation in Denver Colorado this

> >April.

> >> >Does anyone out there know anything about it? I know it is

April

> >25

> >> >and 26 but do not know the itinerary or even how good these

> >> >conferences usually are. My husband and I have to decide by

Monday

> >> >(they just called today) if we want to go. Any help would be

> >> >appreciated! It is a long way from Michigan and we want to

make

> >sure

> >> >it would be worth the trip!

> >> >

> >> >

> >> >By the way..we are still batteling Hannah's cough but she has

not

> >> >gotten any worse and actually seems to be more full of

energy...We

> >go

> >> >back to our clinic Tuesday...we are hoping they do not need to

> >admit

> >> >her!

> >> >

> >> >

> >> >