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message from Percy

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Hi all,

This message from Percy was inadvertantly sent to the " group moderator "

instead of the general list, so I'm re-posting it for him.

--Tull

Assistant Moderator

Pancreatitis Association, Int'l

----------------------------- Forwarded message ---------------------------

Date: Mon, 10 Nov 2003 11:32:43 -0800 (PST)

Subject: Last minute change up

To: pancreatitis Moderator <pancreatitis-owner >

Hello group, This is Percy in Dallas again. Sorry my contact has been

so limited lately but everything has been a little topsy-turvy lately. I went

into the hospital thursday for another ERCP and was discharged late Friday

night. I noticed before I left that I was having problems above the usual but

contributed this to the procedure. It turns out that the stent that was

placed apparently never held or was completely blocked within a few hours,

now I'm back in the hospital again and initially was told that after reviewing

my x-rays that I would need a new stent. Now, I was OK with that but after

waiting all morning I'm now told that it would do no good to have that done

and that I need to have a total removal of my pancreas, or a bilary bypass.

Now I feel that at this time removal is just a little extreme and way too

much to wrap my brain around since I am still producing insulin and he wants

me to make a decision today about the whole deal. He says that I don't have

enough of my pancreas left to perform an autolog-islet trans even if I were

to find someone to do the procedure, and just doing the bypass would only

delay the enevitable. I have to go now because my infusion pump is beeping

low battery but I will be back a.s.a.p. Someone please give me some input.

I just wanted another stent.

Percy in Dallas.

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