Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Beth I'm glad you have previous experience with him it should make things easier on Will. I know everytime someone new sees Cassie it's a whole new round of anxiety for her. This should make things easier for him since they are both used to each other. Since he has worked with Will before he is aware of his special needs. It has also been my experience with Dr Fox that he is one of the few people who has treated Cassie that has not let her age fog his judgement as far as pain goes. He is also one of the few Dr we have encountered that doesn't " hid " the facts from us. There have been many time with others where we have had to demand test results. I track her amylase and lipase levels every time they are drawn. I like to see where we are vs where we've been. Many times I just get normal or abnormal no values. You'd think we were asking for the nuclear launch codes instead of lab results. Another thing about Dr Fox, he sent me back copies of all Cassie's medical records sent to him plus copies of all correspondence to Dr's up here in Maine. Said I might need them some time. Good luck. Does Will have an appointment soon? I was really suprized with Cassie, Her GI up here suggested a referal to him on Sept 19 last year, We saw him Nov 4th. We have an adult GI group here in Bangor 9 DR's I beleive, I was refered to them, still have no appointment yet, was told they are booking Appont. for Aug/Sep. Hopefully you wont have to wait to long. Another question for you, one that most people forget about when we have sick kids, are you doing ok? Cassie like Will has special needs. Her's are nowhere near as server as Will's but none the less ADHD and a non verbal learning disorder ontop of pancreatitis is bad enough I can't image what you are going thru. If you just need to vent please feel free to e-mail me directly. How is Will today? Again good luck and god bless Patty Hurst Bangor, ME Maine State Rep PAI Quote Link to comment Share on other sites More sharing options...
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