KELLY - School Issues

[Guest guest]

,

My daughter who is 5 started 6 months ago. She was absolutely fine. I

was a nervous wreck and kept writing and asking advice from this

wonderful list. Eilish has however been coming to the school since she

was 15months old twice a day to pick up her brother and we also help

twice a week in his class. She knew her teacher well, so that helped a

lot. The Cf thing is what freaked me out. Who was going to breathe on

her etc. When Liam started (8 1/2 now) I was so sad to have my baby

going to school. I never cried though. I wouldn't let myself upset

him. Plus I had whirlwind Eilish at home anyway. What I did with him

was to take him there on the weekends now and again and he played on the

swings, we looked around, showed him the toilet and where his class was.

He settled in really well. But you know what I think for us really

helped, was that I did help and still do two days a week in his class.

That way I knew all his friends and they knew me. I know not everyone

can do this. We also have a lot of friends over to play and we do with

Eilish also. That way they bond well with the others. And with Eilish

the kids get to know she has to take tablets and sometimes goes to hsp.

Hope I haven't rambled on to much. We don't have 504 plans etc. here.

We have no need for them. Our school does what is needed no questions

asked.

(Australia)

school issues (long posting)

Hi all, just checking in to update you all with some news about ,

first of all, we just found out that my grandmothers sister's child who

is 45

yrs old has cystic fibrosis. Apparently he has been healthy most of his

life

up until now, he has the same gene mutations as , so that's good

news,

's doctor did tell us that would live to be past his 30's

so

this gives us hope. Well, anyway, I really need some assurance,

was

accepted to a program through the state of Florida, called early

intervention

program due to this illness and adhd. He will be starting school in

March. I

have already put his 504 plan together and we are just getting ready to

finish his I E P plan. I took the liberty to put together workbooks for

's teacher, school nurse and the principal, which basically

explains

just about everything about what his needs are. ( by the way thankyou

Bev for

the info) I have even gone as far as highlighting the important parts.

Here

is the biggie, I am worried that will have a hard time

adjusting,

awhile back (about 2 yrs) went to preschool and he cried every

day,

he would just latch on to me and it was hard for me, usually I left

crying,

well it didn't help that I was pregnant at that time with his brother, I

was

really hormonal lol. At that time we didn't know had this

disease so

maybe that had to do a lot with it. I've got butterflies, I have so many

questions that I want and need answered. I like to know what's going on

and I

like to be prepared and organized. will be seeing a behaviorist

in

March due to symptoms of adhd, I am hoping that he will be able to give

me

some insight on what to expect and so forth, I have a lot on my mind, I

talked to my husband but he really doesn't know what to say, My family

says

that I'm rushing into school, he is almost five years old. His

doctors believe that he needs structure and a routine and going to

school

will be able to accomplish that, I agree. How did you all as parents

deal

with your child going to school for the very first time? and with cystic

fibrosis on top of that. Did your kids cry? Did you cry? Please could

you all

give me some insight, I really would appreciate it.

Thanks, , mommy of 4yrs 10 months old w/cf and adhd and

19

months old no/cf