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Re: ERCP to Heidi

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Hi, Heidi! Thanks very much for your response.

You have pseudocysts too?! May I be nosey ... do you mind my asking

what is to happen with them? How are you dealing with them? You're

the first person I've spoken with who is dealing with pseudocysts.

Barry's surgeon told us people can and do live with them. Also, if

the cysts are small enough, they can dissolve on their own (maybe the

miracle we are waiting for). His cysts are around 11 cm in length.

If they are aspirated, they usually come back I've read. The surgeon

told us Barry's future may entail surgically placing a permanent

drain from the cysts into the stomach. Right now we're on hold ...

waiting until the cystic fluid is less dense.

Heidi, you stated you have pain with your pseudocysts ... is it due

to pressure on other organs or something else? Are you on

restrictions on how much weight you may lift? The surgeon told Barry

he may lift small weights (he has shoulder and hip pain and thinks

maybe it's from loss of muscle ... he wants to start lifting light

weights). But the surgeon warned NO sit-ups. I guess it's fear of

rupturing the pseudocysts.

My heart goes out to you enduring all that pain in the past, but

thank God you seem to be doing much better, Heidi! It's amazing I

found someone who answered my question - from first-hand experience -

about less pain from a burnt-out (necrosed) pancreas.

God bless you and you made my day, Heidi!

Beth

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