Standard Care for CF Infant

[Guest guest]

My son was recently diagnosed with CF and we are battling with the

insurance company about his care. The pediatric pulmonologist we

saw initially said Zach needed to be seen regularly by a pediatric

pulmonogist, nutritionist, and a cpt specialist. Our insurance

company wants to send Zach to the local pulmonologist who does not

specialize in pediatrics. Is this normally how things work?

What are the necessary specialists Zach should have?

We are willing to fight the insurance company for the best care for

Zach but we are not sure what is the correct care for him.

If anyone could point me in the right direction I would really

appreciate it. Thanks!!

Sara

Mom to Zach 1 wcf