the short of a long story

[Guest guest]

As usual I'm far behind in emails. I manage to read a few, here and there but

life has been interesting, at best so participation has been scarce.

This summer was taken up with my boyfriend. We thought he had lung cancer as all

testing led to it, including the state-of-the-art PET scan. So, he underwent

surgery to remove a lobe of his lung but the piece tested during surgery was

negative for cancer but suspicious for TB. So, only a portion of the lobe was

removed and he was in isolation for TB til he was released a week later. Well,

the culture never grew so after 5 or 6 wks he was taken off the awful meds. We

will never know, for certain, what he had.

Then, in September, my sweet 10 yr old niece was diagnosed with cystic fibrosis

so in October she had to spend 2 wks in the hospital. I went to NJ to visit for

3 days each week.

Through all this my pancreatitis was rearing it's ugly head. My frequent doctor

visits have been frustrating because we have no solutions. We think the problem

is my mutated cf gene and/or my hepatitis C. But he wants me to go to Boston to

see Dr. Banks at Brigham and Women's Hospital. He will write to him and

then they will call me to schedule so I'm sure it will be a month or more! I

think my doctor said he knows him plus I guess he's supposed to be

internationally known. For some reason the same rings familiar. Peg, if you're

still out there- is that one of the doctors saw? I'm sure I heard the

name before but am not certain where.

Even though I will definitely be making the trip to Boston I am still interested

to hear if anyone has any comments on this doctor.

Love to all,

Jill