Re: We're doing a news interview! (Lenora)

[Guest guest]

Lenora thank you so much for the advice. It's perfect and I intend to

use everything you suggested. I do know that I'm doing this for so

many people and that's the reason I know I'll get through it and the

reason it's so crucial that I get it right! Thanks again for your

kind advice!!

Michele

> Michele,

> This is so scary for people who really do not seek fame and would

> much rather be behind the camera that in front of it.

> But I always feel it is our duty to step outside the comfort zone

> when it comes to CF. And I am glad I did it when was young

> and cute because now that he is 7 he has a mind of his own and it

> definitely doesn't involve being " in public " as he says. In fact

just

> yesterday I had to cancel our appointment to help film a public

> service announcement because he was in tears about it.

> Hard as it as for me, I had to remember he is a person with

opinions

> and thoughts of his own. And I left the tv work to younger kids who

> hopefully enjoy it more.

> I did an interview once and was very depressed at that time and I

> thought I blew it, but they salvaged the stupid, rambling things I

> said and made it into something reasonably good.

> I would just try to write down the basic info about cf so you don't

forget it:

> 1 in 27 Americans is a carrier of one of the genes for CF (That is

10

> million people).

> You need to inherit a gene from each parent to have cf.

> CF involves several areas of the body, but most significantly the

> lungs and digestive system. Instead of a smooth mucus which we all

> have to keep things clean and moving in our bodies, a person with

CF

> produces a thick, sticky mucus which blocks digestive enzymes and

> clogs the lungs making them prone to infections which can destroy

> them.

> It is a progressive disease which can be slowed by therapies and

> medications but as yet cannot be cured.

> The CFF is an organization which raises money to fund research to

> cure cf and find helpful treatments to keep patients healthy until

a

> cure is found.

> With the financial, emotional and physical drain a chronic illness

> puts on a family, it brings to light the fact that we are not all

as

> independent as we might have thought. As uncomfortable as it is, we

> may have to ask for help at times, and in such a major thing as

> curing a devastating disease, much help is needed.

> Just mty thoughts.

> Keep calm and know you are doing this for so many others.

> Thank you,

> Lenora

>

>

>

> >Hello all,

> >I haven't read any posts as of late so I hope all of you are well.

> > and I are going to be interviewed by our local news station

> >on Monday and I am a basket of nerves! It all started when one of

my

> >co-workers asked if I'd participate in a promotional ad for Time

> >Warner, where I work. I said sure, but when I started telling the

> >news lady about and CF and the upcoming Great Strides walk

> >she said that we'd have to do a whole separate piece on this! Plus

> >they want to cover the walk. So she called yesterday and she's

coming

> >Monday. Sooooo, I need advice. I've only been subjected to this

> >damned disease for a year so I'm afraid that I'll not get the

message

> >across the way I want to. What I want to do is use key phrases that

> >will touch the audience and compell them to possibly participate in

> >our search for the cure. I want to be able to describe this disease

> >effectively without babbling on and on. I'd also like to touch on

the

> >recent advancements of CF but still emphasize the road ahead that

> >leads to a cure. I know enough to explain CF to a relative or a co-

> >worker but I'm afraid that it may not be good enough for tv and I

> >want to do the CF community justice by being effective. I've never

> >been much of a public speaker. So you guys out there (Kim with all

of

> >your wonderfully eloquent posts) I need some tips (and

valium...just

> >kidding). What would you guys say if presented with the same

> >opportunity?

> >This really is such a great opportunity to broadcast CF to my

> >community and possibly gain some participation in our Great Strides

> >walk which from what I understand has never been a huge event. I

just

> >don't want to screw it up.

> >Thanks in advance for all of your help!

> >

> >Michele

> >mom to Mikailah 5 1/2 w/asthma & Matt 11 mos w/CF

> >

> >

[Guest guest]

Lenora thank you so much for the advice. It's perfect and I intend to

use everything you suggested. I do know that I'm doing this for so

many people and that's the reason I know I'll get through it and the

reason it's so crucial that I get it right! Thanks again for your

kind advice!!

Michele

> Michele,

> This is so scary for people who really do not seek fame and would

> much rather be behind the camera that in front of it.

> But I always feel it is our duty to step outside the comfort zone

> when it comes to CF. And I am glad I did it when was young

> and cute because now that he is 7 he has a mind of his own and it

> definitely doesn't involve being " in public " as he says. In fact

just

> yesterday I had to cancel our appointment to help film a public

> service announcement because he was in tears about it.

> Hard as it as for me, I had to remember he is a person with

opinions

> and thoughts of his own. And I left the tv work to younger kids who

> hopefully enjoy it more.

> I did an interview once and was very depressed at that time and I

> thought I blew it, but they salvaged the stupid, rambling things I

> said and made it into something reasonably good.

> I would just try to write down the basic info about cf so you don't

forget it:

> 1 in 27 Americans is a carrier of one of the genes for CF (That is

10

> million people).

> You need to inherit a gene from each parent to have cf.

> CF involves several areas of the body, but most significantly the

> lungs and digestive system. Instead of a smooth mucus which we all

> have to keep things clean and moving in our bodies, a person with

CF

> produces a thick, sticky mucus which blocks digestive enzymes and

> clogs the lungs making them prone to infections which can destroy

> them.

> It is a progressive disease which can be slowed by therapies and

> medications but as yet cannot be cured.

> The CFF is an organization which raises money to fund research to

> cure cf and find helpful treatments to keep patients healthy until

a

> cure is found.

> With the financial, emotional and physical drain a chronic illness

> puts on a family, it brings to light the fact that we are not all

as

> independent as we might have thought. As uncomfortable as it is, we

> may have to ask for help at times, and in such a major thing as

> curing a devastating disease, much help is needed.

> Just mty thoughts.

> Keep calm and know you are doing this for so many others.

> Thank you,

> Lenora

>

>

>

> >Hello all,

> >I haven't read any posts as of late so I hope all of you are well.

> > and I are going to be interviewed by our local news station

> >on Monday and I am a basket of nerves! It all started when one of

my

> >co-workers asked if I'd participate in a promotional ad for Time

> >Warner, where I work. I said sure, but when I started telling the

> >news lady about and CF and the upcoming Great Strides walk

> >she said that we'd have to do a whole separate piece on this! Plus

> >they want to cover the walk. So she called yesterday and she's

coming

> >Monday. Sooooo, I need advice. I've only been subjected to this

> >damned disease for a year so I'm afraid that I'll not get the

message

> >across the way I want to. What I want to do is use key phrases that

> >will touch the audience and compell them to possibly participate in

> >our search for the cure. I want to be able to describe this disease

> >effectively without babbling on and on. I'd also like to touch on

the

> >recent advancements of CF but still emphasize the road ahead that

> >leads to a cure. I know enough to explain CF to a relative or a co-

> >worker but I'm afraid that it may not be good enough for tv and I

> >want to do the CF community justice by being effective. I've never

> >been much of a public speaker. So you guys out there (Kim with all

of

> >your wonderfully eloquent posts) I need some tips (and

valium...just

> >kidding). What would you guys say if presented with the same

> >opportunity?

> >This really is such a great opportunity to broadcast CF to my

> >community and possibly gain some participation in our Great Strides

> >walk which from what I understand has never been a huge event. I

just

> >don't want to screw it up.

> >Thanks in advance for all of your help!

> >

> >Michele

> >mom to Mikailah 5 1/2 w/asthma & Matt 11 mos w/CF

> >

> >

[Guest guest]

Do you work for Time Warner in Atlanta?

If so, What TV station? I live in the Athens area. I would like to watch.

Tracey Oldham

Georgia

2 Girls w/CF

Re: We're doing a news interview! (Lenora)

Lenora thank you so much for the advice. It's perfect and I intend to

use everything you suggested. I do know that I'm doing this for so

many people and that's the reason I know I'll get through it and the

reason it's so crucial that I get it right! Thanks again for your

kind advice!!

Michele

> Michele,

> This is so scary for people who really do not seek fame and would

> much rather be behind the camera that in front of it.

> But I always feel it is our duty to step outside the comfort zone

> when it comes to CF. And I am glad I did it when was young

> and cute because now that he is 7 he has a mind of his own and it

> definitely doesn't involve being " in public " as he says. In fact

just

> yesterday I had to cancel our appointment to help film a public

> service announcement because he was in tears about it.

> Hard as it as for me, I had to remember he is a person with

opinions

> and thoughts of his own. And I left the tv work to younger kids who

> hopefully enjoy it more.

> I did an interview once and was very depressed at that time and I

> thought I blew it, but they salvaged the stupid, rambling things I

> said and made it into something reasonably good.

> I would just try to write down the basic info about cf so you don't

forget it:

> 1 in 27 Americans is a carrier of one of the genes for CF (That is

10

> million people).

> You need to inherit a gene from each parent to have cf.

> CF involves several areas of the body, but most significantly the

> lungs and digestive system. Instead of a smooth mucus which we all

> have to keep things clean and moving in our bodies, a person with

CF

> produces a thick, sticky mucus which blocks digestive enzymes and

> clogs the lungs making them prone to infections which can destroy

> them.

> It is a progressive disease which can be slowed by therapies and

> medications but as yet cannot be cured.

> The CFF is an organization which raises money to fund research to

> cure cf and find helpful treatments to keep patients healthy until

a

> cure is found.

> With the financial, emotional and physical drain a chronic illness

> puts on a family, it brings to light the fact that we are not all

as

> independent as we might have thought. As uncomfortable as it is, we

> may have to ask for help at times, and in such a major thing as

> curing a devastating disease, much help is needed.

> Just mty thoughts.

> Keep calm and know you are doing this for so many others.

> Thank you,

> Lenora

>

>

>

> >Hello all,

> >I haven't read any posts as of late so I hope all of you are well.

> > and I are going to be interviewed by our local news station

> >on Monday and I am a basket of nerves! It all started when one of

my

> >co-workers asked if I'd participate in a promotional ad for Time

> >Warner, where I work. I said sure, but when I started telling the

> >news lady about and CF and the upcoming Great Strides walk

> >she said that we'd have to do a whole separate piece on this! Plus

> >they want to cover the walk. So she called yesterday and she's

coming

> >Monday. Sooooo, I need advice. I've only been subjected to this

> >damned disease for a year so I'm afraid that I'll not get the

message

> >across the way I want to. What I want to do is use key phrases that

> >will touch the audience and compell them to possibly participate in

> >our search for the cure. I want to be able to describe this disease

> >effectively without babbling on and on. I'd also like to touch on

the

> >recent advancements of CF but still emphasize the road ahead that

> >leads to a cure. I know enough to explain CF to a relative or a co-

> >worker but I'm afraid that it may not be good enough for tv and I

> >want to do the CF community justice by being effective. I've never

> >been much of a public speaker. So you guys out there (Kim with all

of

> >your wonderfully eloquent posts) I need some tips (and

valium...just

> >kidding). What would you guys say if presented with the same

> >opportunity?

> >This really is such a great opportunity to broadcast CF to my

> >community and possibly gain some participation in our Great Strides

> >walk which from what I understand has never been a huge event. I

just

> >don't want to screw it up.

> >Thanks in advance for all of your help!

> >

> >Michele

> >mom to Mikailah 5 1/2 w/asthma & Matt 11 mos w/CF

> >

> >

[Guest guest]

Do you work for Time Warner in Atlanta?

If so, What TV station? I live in the Athens area. I would like to watch.

Tracey Oldham

Georgia

2 Girls w/CF

Re: We're doing a news interview! (Lenora)

Lenora thank you so much for the advice. It's perfect and I intend to

use everything you suggested. I do know that I'm doing this for so

many people and that's the reason I know I'll get through it and the

reason it's so crucial that I get it right! Thanks again for your

kind advice!!

Michele

> Michele,

> This is so scary for people who really do not seek fame and would

> much rather be behind the camera that in front of it.

> But I always feel it is our duty to step outside the comfort zone

> when it comes to CF. And I am glad I did it when was young

> and cute because now that he is 7 he has a mind of his own and it

> definitely doesn't involve being " in public " as he says. In fact

just

> yesterday I had to cancel our appointment to help film a public

> service announcement because he was in tears about it.

> Hard as it as for me, I had to remember he is a person with

opinions

> and thoughts of his own. And I left the tv work to younger kids who

> hopefully enjoy it more.

> I did an interview once and was very depressed at that time and I

> thought I blew it, but they salvaged the stupid, rambling things I

> said and made it into something reasonably good.

> I would just try to write down the basic info about cf so you don't

forget it:

> 1 in 27 Americans is a carrier of one of the genes for CF (That is

10

> million people).

> You need to inherit a gene from each parent to have cf.

> CF involves several areas of the body, but most significantly the

> lungs and digestive system. Instead of a smooth mucus which we all

> have to keep things clean and moving in our bodies, a person with

CF

> produces a thick, sticky mucus which blocks digestive enzymes and

> clogs the lungs making them prone to infections which can destroy

> them.

> It is a progressive disease which can be slowed by therapies and

> medications but as yet cannot be cured.

> The CFF is an organization which raises money to fund research to

> cure cf and find helpful treatments to keep patients healthy until

a

> cure is found.

> With the financial, emotional and physical drain a chronic illness

> puts on a family, it brings to light the fact that we are not all

as

> independent as we might have thought. As uncomfortable as it is, we

> may have to ask for help at times, and in such a major thing as

> curing a devastating disease, much help is needed.

> Just mty thoughts.

> Keep calm and know you are doing this for so many others.

> Thank you,

> Lenora

>

>

>

> >Hello all,

> >I haven't read any posts as of late so I hope all of you are well.

> > and I are going to be interviewed by our local news station

> >on Monday and I am a basket of nerves! It all started when one of

my

> >co-workers asked if I'd participate in a promotional ad for Time

> >Warner, where I work. I said sure, but when I started telling the

> >news lady about and CF and the upcoming Great Strides walk

> >she said that we'd have to do a whole separate piece on this! Plus

> >they want to cover the walk. So she called yesterday and she's

coming

> >Monday. Sooooo, I need advice. I've only been subjected to this

> >damned disease for a year so I'm afraid that I'll not get the

message

> >across the way I want to. What I want to do is use key phrases that

> >will touch the audience and compell them to possibly participate in

> >our search for the cure. I want to be able to describe this disease

> >effectively without babbling on and on. I'd also like to touch on

the

> >recent advancements of CF but still emphasize the road ahead that

> >leads to a cure. I know enough to explain CF to a relative or a co-

> >worker but I'm afraid that it may not be good enough for tv and I

> >want to do the CF community justice by being effective. I've never

> >been much of a public speaker. So you guys out there (Kim with all

of

> >your wonderfully eloquent posts) I need some tips (and

valium...just

> >kidding). What would you guys say if presented with the same

> >opportunity?

> >This really is such a great opportunity to broadcast CF to my

> >community and possibly gain some participation in our Great Strides

> >walk which from what I understand has never been a huge event. I

just

> >don't want to screw it up.

> >Thanks in advance for all of your help!

> >

> >Michele

> >mom to Mikailah 5 1/2 w/asthma & Matt 11 mos w/CF

> >

> >

[Guest guest]

No I work at the Time Warner in Binghamton NY. The TV station might

put the article on their website. If they do I'll post the link so

you guys can see it.

Take care - Michele

> Do you work for Time Warner in Atlanta?

> If so, What TV station? I live in the Athens area. I would like to

watch.

> Tracey Oldham

> Georgia

> 2 Girls w/CF