Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Good Morning to all I finialy went to the Dr's yestreday. I still wasn't feeling good about going. Mike made me the appontment cause I wasn't doing it. Then he went with me. I was really apprehensive about going. I 'm just not feeling strong enough to fight for 2 of us. Cassie and me. At least that's the way Ive been feeling. My PCP was not available to see me so he scheduled me with another Dr there who was new. So Oh great I get to fight for relief with a brand new dr. Well, was I ever wrong. It was an overall pretty easy experience. We sat and talked about my past history, she was very open to the knowledge we had on SPINK1 and CP. She says she believes I am diffinetly have pancreatic attacks. Says her concern is how bad I have it, and not why. In her opinion the genetics leave no doubt what it is. When we find out how bad, we can maybe figure out the best approach. So.. I had labs taken for a complete workup yesterday including, amylase, lipase and triglicerides. I am having an altrusound next Thursday. They also referred my to GI though I have no appointment yet. They told me to expect Aug/Sep before I get in. Dr says she will do much prelim. testing prior to GI appoint becuase of the lenght of time it will take to be seen. I was also giving a prescription for Vicodin and for phengran for pain and nausea. We both walked out of there in total shock! It was never this easy with Cassie, NEVER! She wants to go see my Dr now. So that's where I'm at now. Thanks for your words of encouragement to get me to go. I think hearing from you was just what Mike needed to push me out the door and to the Dr's. Hugs to all Patty Hurst Bangor, ME Maine State Rep PAI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 > I finialy went to the Dr's yestreday. > My PCP was not available to see me so he scheduled me with another Dr there who was new. So Oh great I get to fight for relief with a brand new dr. Well, was I ever wrong. It was an overall pretty easy experience. She says she believes I am diffinetly have pancreatic attacks. Says her concern is how bad I have it, and not why. In her opinion the genetics leave no doubt what it is. They also referred my to GI though I have no appointment yet. They told me to expect Aug/Sep before I get in. Dr says she will do much prelim. testing prior to GI appoint becuase of the lenght of time it will take to be seen. We both walked out of there in total shock! Patty Hurst Patty, What great news! I'm so glad that you had Mike looking out for you and that you got this appointment under your belt. It's good that the doctor was so open-minded and considerate of your concerns and your needs. Could she not treat Cassie, too? I realize pediatrics is necessary to a point, but Cassie's got a disease that will carry on through adulthood and it would be great that she was seen by someone who was treating you as well. I just wanted to jump up and down for you! It sounds like you've got a keeper! Keep us up to date. With hope and prayers, Heidi Heidi H. Griffeth Bluffton, SC State and Regional Representative Pancreatitis Association, International Note: All comments are personal opinion only, and should not be a substitute for professional medical consultation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 > I finialy went to the Dr's yestreday. > My PCP was not available to see me so he scheduled me with another Dr there who was new. So Oh great I get to fight for relief with a brand new dr. Well, was I ever wrong. It was an overall pretty easy experience. She says she believes I am diffinetly have pancreatic attacks. Says her concern is how bad I have it, and not why. In her opinion the genetics leave no doubt what it is. They also referred my to GI though I have no appointment yet. They told me to expect Aug/Sep before I get in. Dr says she will do much prelim. testing prior to GI appoint becuase of the lenght of time it will take to be seen. We both walked out of there in total shock! Patty Hurst Patty, What great news! I'm so glad that you had Mike looking out for you and that you got this appointment under your belt. It's good that the doctor was so open-minded and considerate of your concerns and your needs. Could she not treat Cassie, too? I realize pediatrics is necessary to a point, but Cassie's got a disease that will carry on through adulthood and it would be great that she was seen by someone who was treating you as well. I just wanted to jump up and down for you! It sounds like you've got a keeper! Keep us up to date. With hope and prayers, Heidi Heidi H. Griffeth Bluffton, SC State and Regional Representative Pancreatitis Association, International Note: All comments are personal opinion only, and should not be a substitute for professional medical consultation. Quote Link to comment Share on other sites More sharing options...
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