Guest guest Posted March 19, 2003 Report Share Posted March 19, 2003 I live in Fayetteville, Georgia. I have 2 children, a 13 year old daughter without CF and a 6 yr. old daughter which was just diagnosed with CF in September of 2002. It took years of being demandant that there was something else wrong with her other than asthma & allergies. But the doctors didn't want to listen they knew more than we did. Finally, last Feb. I convinced a doctor to do a chest x-ray during a rutine sick visit. They x-ray came back she had full blown pnemonia. They doctor could not hear it with a stethescope even after she knew exactly where it was. My daughter being born premmie had lung damage. She learned to compensate for her breathing problems to the extent she was breathing so light they couldn't hear her breathe. I finally got her hooked up with a Pulmonologist at The Children's Hosp. He has been wonderful! He has done many tests and basically showed I was not crazy. After being hospitalized in August with pnemonia, the doctor has concluded through testing that she had CF. We are starting to use different meds and finding they work better than what she was using. We now have the vest therapy and that is a life saver!!!Over the 6 years we have learned what we can and can't do, the fatigue level, eating problems, extreme mucus problems, etc. We are open to any advise anyone can give us. Quote Link to comment Share on other sites More sharing options...
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