RE: Hello, Shrikant - n here!

[Guest guest]

Dear n,

Thanks a lot for your detailed reply. Today is Sharada's day 7 in hospital.

The fever is under control but still not gone completely. Her doctor says to

keep her in hospital for another 7 days. They could not isolate PA in this

episode, but they are sure that it is PA only playing havoc. As far as the

management of Pneumonia is concerned we are happy. They are treating it

aggressively with Ceftazidime and Gentamycin in IV and Tobramycin in

nebulizer.

About food, whether she is sick or otherwise, Sharada is never hungry. It

may be psychological but I will check about Gastro-esophageal Reflux. Her

mother is having a mild Gastro-esophageal Reflux. I am not sure if

Gastro-Esophageal Reflux is also hereditary ....

Everyday morning we hope that today everything will be fine. As the day

progresses most things go otherwise. But sometime we end our day with a

little success at some front. This re-kindles our hope that tomorrow

everything will go well.

Thanks to you all and keep the hope alive.

Shrikant

Father of Sharada 6 yowcf

Hello, Shrikant - n here!

The good news here is that it does seem that the pneumonia is resolving.

Other good news is that I know all too many GERIATRIC

persons with cystic fibrosis who, as do I, culture PA, but it responds

readily to treatment; there is no way that I can give an opinion about

your child, but in regard to the subject in general, most cf doctors as

sume that it is dormant (PA) in most once firmly cultured. Even in the

United States, some cf patients do acquire tuberculosis which until

very recently was not resistant to antibiotic treatment. I pray that she

not have this, and it is rare here partly because of the cross-contamin

ation guidelines most parents with children with cf usually follow. I

shall

really meditate on this one!

There are so many new approaches to gaining weight that I cannot count

them. One possibility is a gastric tube with night feedings; the

other is a review of what she actually eats--I HATED food at her age!

Another thing to investigate is to rule out the possibility of gastro-eso

phogeal reflux, and if it is there (as it is in most cf patients), to

treat it

aggressively with a proton-pump inhibitor such as Prilosec, Aciphex,

Prevacic--whatever works--you can search these under Proton Pump

Inhibitors or you can ask me to do to it for you, as I am aware that you

work more than full time!

Otherwise, meditations and highest hopes for all of you; please do keep us

posted on how things progress, digress or whatever they do!

Love to all of you, during this difficult time,

n Rojas, California, usa, who is a day behind on her e-mail and

apologizes for so late a response