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The fine art of toilet cleaning (WC, Loo, bano) or cf101A.1- ok to delete!

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I have just spent the last half-hour cleaning the toilet in my apartment. As

I

was doing so, I thought of the thousands upon thousands of times that I

had done this, my husband had done this, the kids had done this--because

that is what one must do in a household with one or more persons with

cystic fibrosis.

I have gotten better at it over the years. First I buy those chlorinated

little

tablets to put in the WC itself--blue is not necessary--but that is merely

the

beginning. After a major cf poop event, the real fun begins. I keep a very

large bottle of antibacterial dishwasher/hand cleaning detergent on the

floor next to the little chair. In the usa, toilets were often made

primarily

by two companies: (no joke there) and CHURCH, which prompted

my husband to announce that if he had to answer a question from " the

throne room, " he was definitely, in the terms of the CHURCH, speaking

" ex cathedra, " which in Latin means " from the chair, " or definitively.

I always spray or squirt (depending on style of container) the liquid deter

gent all over the blooming thing, and then attack it with a very

stiff-bristled

brush which stands on the other side of the toilet. Then, assuming that

flushing has occurred before this, and if not, that the plunger has been

judiciously employed, I scrub the " poop " out of the thing, flush like mad and

then rinse the brush in the now chlorinated water, then set it back in its

hallowed place.

The problem with cystic fibrosis is that one does not do this once a week

on Saturday or Sunday morning; one does not do it every other day; one

does not even do it every day: ONE DOES IT WITH THE ARRIVAL OF

EACH POOP BY EACH PERSON IN THE HOUSEHOLD, and I can tell

you that even carriers do a fine job on that little throne, thus enabling it

to

have a fine sense of accomplishment.

They do not tell you this when your child is first diagnosed, when you are

first diagnosed, nor even when you first see a gastroenterologist. It is a

closed subject, discussed only by this elite group of professionally trained

" poopologists, " as someone on one of the lists quipped.

I may have truly lost it this week, but I felt that the subject deserved our

close attention, being definitely cf-related! The guy from the local chain

grocery store who delivers the basics (I actually go out for produce!), after

I have ordered them on line, actually said to me one day, delivering the

unusually large number of unusually large bottles of liquid detergent, " Gosh,

Lady, just what do you DO with all this stuff? " I told him that that was a

" state secret. " He should be in on this skill? No way!

That's it, the fine art of toilet cleaning!

Love to all at cfparents and conncoll; surely someone will have something

more significant to discuss tomorrow!

n Rojas

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