Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 I have just spent the last half-hour cleaning the toilet in my apartment. As I was doing so, I thought of the thousands upon thousands of times that I had done this, my husband had done this, the kids had done this--because that is what one must do in a household with one or more persons with cystic fibrosis. I have gotten better at it over the years. First I buy those chlorinated little tablets to put in the WC itself--blue is not necessary--but that is merely the beginning. After a major cf poop event, the real fun begins. I keep a very large bottle of antibacterial dishwasher/hand cleaning detergent on the floor next to the little chair. In the usa, toilets were often made primarily by two companies: (no joke there) and CHURCH, which prompted my husband to announce that if he had to answer a question from " the throne room, " he was definitely, in the terms of the CHURCH, speaking " ex cathedra, " which in Latin means " from the chair, " or definitively. I always spray or squirt (depending on style of container) the liquid deter gent all over the blooming thing, and then attack it with a very stiff-bristled brush which stands on the other side of the toilet. Then, assuming that flushing has occurred before this, and if not, that the plunger has been judiciously employed, I scrub the " poop " out of the thing, flush like mad and then rinse the brush in the now chlorinated water, then set it back in its hallowed place. The problem with cystic fibrosis is that one does not do this once a week on Saturday or Sunday morning; one does not do it every other day; one does not even do it every day: ONE DOES IT WITH THE ARRIVAL OF EACH POOP BY EACH PERSON IN THE HOUSEHOLD, and I can tell you that even carriers do a fine job on that little throne, thus enabling it to have a fine sense of accomplishment. They do not tell you this when your child is first diagnosed, when you are first diagnosed, nor even when you first see a gastroenterologist. It is a closed subject, discussed only by this elite group of professionally trained " poopologists, " as someone on one of the lists quipped. I may have truly lost it this week, but I felt that the subject deserved our close attention, being definitely cf-related! The guy from the local chain grocery store who delivers the basics (I actually go out for produce!), after I have ordered them on line, actually said to me one day, delivering the unusually large number of unusually large bottles of liquid detergent, " Gosh, Lady, just what do you DO with all this stuff? " I told him that that was a " state secret. " He should be in on this skill? No way! That's it, the fine art of toilet cleaning! Love to all at cfparents and conncoll; surely someone will have something more significant to discuss tomorrow! n Rojas Quote Link to comment Share on other sites More sharing options...
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