Re: Jeni/Chelation Questions?

April 2, 2006

Dear Jeni and to all who can guide us,

The week we started SCD we made an appointment with DAN/ Kucera M.D. (he was

recommended by serve). He was so busy won't be seeing him until April 24 and

25...took three appointments for all of us with the worse ASD like problems!

Thank God he is covered by our insurance and many say he is a good one!

Do you suggest we just keep on doing what we are doing until then.

Supplementing with SCD safe enzymes and supplements....and doing a little goat

yogurt...seems to be helping......as long as we stay away from high

phenol/salicylate foods such as almond flours and over try not to over do it

with the fruit...(but find us eating more than if raw) when we turn it into

sauce! KiKI (22 month old Celiac, with most distinct ASD problems) has to still

eat all her fruits and veg cooked....can't tolerate any nuts....or much of

anything.... .....very intro like diet.....very restricted....everytime we stray

diarrhea come back! She is tolerating a little goat yogurt...no signs of

problems that we can identify.

Do you guys do SCD goat yogurt? or Goat cheese.....we are ALL so limited on

what we can eat thanks to sensitivity and allergy that this would be nice if it

is revealed safe to do it!

Thank you for your reply, Antoinette

(entire family day 41 family probs: Celiac, DH, ADD,ADHD,ASD and more)

Chelation Questions?

Did research on heavy metals. Very disturbing in light of problems

family has had,and are continueing to have. Although will not deny

doing better than ever before thanks to only SCDIET/enzymes/supplements

Does the SCDiet cause Chelation of heavy metals?

Should we wait to see DAN doctor?

Do you have to take SCD safe dairy out of the SCDiet to achieve this?

I read somewhere that sugar, dairy and grain have to be taken out of

diet...SCDIET dose this (but would have to stop the yogurt)...is this

true?

Antoinette and husband want to know. (day 39/Celiac...trying to

help family and KiKi/22 month old, and are ASD symptoms)

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info<http://www.breakingtheviciouscycle.info/\

><http://www.breakingtheviciouscycle.info/<http://www.breakingtheviciouscycle.in\

fo/>>

and

http://www.pecanbread.com<http://www.pecanbread.com/><http://www.pecanbread.com/\

<http://www.pecanbread.com/>>

April 2, 2006

Dear Antionette,

I do suggest continuing what you are already doing while you are waiting for

your DAN appointment. You certainly are on the right track, and your DAN will

probably be impressed that you are a little " ahead of the game. " Taking enzymes

and appropriate supplements and doing a restricted diet (SCD in your case) are

things that he would most likely have told you to do at your appointment. But

since you are already doing these things, he may be able to get you started on

whatever comes next since the dietary changes are already well underway.

If you guys are tolerating the goat yogurt, then I would keep doing it until the

DAN tells you otherwise. He most likely will want to do some urine tests to see

if Kiki is excreting excessive amounts of casomorphine. If she is, he may pull

the plug on the yogurt until her gut has healed some more. But for now, I would

continue with the goat yogurt.

We don't do the yogurt in our family because our tests did show my kids

excreting large amounts of casomorphine. But we have been told that after the

kids heal (which may take a long time for us), we should be able to tolerate

something like goat yogurt. For now, we will be using SCD legal probiotics.

I just wanted to say that you are doing a very good job with your children. I

know that you are aware because you are already seeing some progress. Your hard

work is paying off. So don't be discouraged that Kiki is still close to the

introductory foods. My kids are too, and they have been on this diet for 4

months. Everything is still cooked, deseeded, and pureed. We are on stage 2.

The progress has been slow, but it is still there.

We are primarily impressed with the cognitive gains and behavioral changes that

have taken place in these four months. I am completely astounded at how angelic

my children are on this diet. Just yesterday, Margeaux's friend (who is 6 years

old) even made an observation about Margeaux's improved behavior. We were at

the park, and on a few occasions I asked Margeaux to come to me or perform other

tasks. Every time her response was a cheerful, " Yes, mommy. " Abi, her friend,

commented to her mother later on, " Mommy, Margeaux is just so good now! " And

she is right! While Margeaux is not perfect, she is SO GOOD AND A COMPLETE JOY!

That is completely as a result of the progress we've made with SCD and

supplements (and God's merciful guidance in showing us these " helps " ).

So while the gastrointestinal progress is rather slow, I know it is making a

change. I see it happening in their brains and in their behavior. I am

trusting that the gut progress will follow in time.

I will pray for your husband and his job interview. It is obvious that you are

a believer, and so I want to encourage you to continue to trust in His

provision. He has led you to this diet, to this list, and to your upcoming DAN.

He has his eye on your children, and I believe He intends to help them.

Every time I start to doubt this in my own life, I review how good He has been

to reveal to us the information we have so that we can help our children. The

truth is that WE ARE THE LUCKY ONES! I see countless children and adults

everyday that I know have the same gastrointestinal and mental problems that we

have (you know how you begin to recognize it everywhere once you become

informed). But those children and adults don't know what we know or aren't

willing to listen. We are the lucky ones because we have found a big part of

the answer and are willing to pursue it. Our " vicious cycle " will be broken.

Others will continue in it.

Take heart! God is on your side! You are a great mom to your kids, and you and

God are going to see them through this.

Cordially,

Jeni Lynn (gastrointestinal problems)

SCD 2 months

mom to Margeaux, 6 yr. (heavy metal toxicity, add, gastrointestinal problems)