Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 I have 3 kids with CF and as of now 2 vests. I had no problem getting 2. Insurance covered it. I switch them around and don't know if I handle the noise and space of another vest. School and bedtimes are diff. so with 3 kids 2 is ok. With 2 kids I think you need 2! Since we always do 2 at the same time. Rosemary from New York with 3 children with CF - they are 12.5, 10, 6...... I coined the phrase " BREATHE DAMMIT " ; we have a dog we named -are you ready for this - TOBI after their medication!!! At least it wasn't albuterol or Coly... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 I told the nurse we would like to look into getting Adam and Alec vests. She said that we could get away with 2 vests and 1 machine. For the families with mult cfers, is this the approach your family is taking? I understand the cost issue, but I was hoping the time issue would improve..After one round of Tobi and Cipro, Adam didn't culture pa this time. The clinic's position is one more round of Tobi and if he is neg again, Tobi will be stopped. I was told even though he didn't culture it, they may still be there and the thoart swap didn't pick it up. Is my clinic's approach to pa typical? W. , mom to Adam and Alec both 7 w/cf and 2 teenage sons w/o cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 Hi , We are finding that most insurances will cover it that way. They consider a second device as a " convenience " and not medically necessary. About the only time they will cover a second device is when a sibling leaves the home permanently, e.g. goes to college, moves into their own place, etc. Other than that, we have not had any success in convincing them of the need. I know this doesn't help much, but I hope it answers your question. Randy vest and mult cf kids I told the nurse we would like to look into getting Adam and Alec vests. She said that we could get away with 2 vests and 1 machine. For the families with mult cfers, is this the approach your family is taking? I understand the cost issue, but I was hoping the time issue would improve..After one round of Tobi and Cipro, Adam didn't culture pa this time. The clinic's position is one more round of Tobi and if he is neg again, Tobi will be stopped. I was told even though he didn't culture it, they may still be there and the thoart swap didn't pick it up. Is my clinic's approach to pa typical? W. , mom to Adam and Alec both 7 w/cf and 2 teenage sons w/o cf ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 Oops..., I meant will not cover it. I'm sorry if I confused you. vest and mult cf kids I told the nurse we would like to look into getting Adam and Alec vests. She said that we could get away with 2 vests and 1 machine. For the families with mult cfers, is this the approach your family is taking? I understand the cost issue, but I was hoping the time issue would improve..After one round of Tobi and Cipro, Adam didn't culture pa this time. The clinic's position is one more round of Tobi and if he is neg again, Tobi will be stopped. I was told even though he didn't culture it, they may still be there and the thoart swap didn't pick it up. Is my clinic's approach to pa typical? W. , mom to Adam and Alec both 7 w/cf and 2 teenage sons w/o cf ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 That is not how we do tobi in our CF Clinic. My daughter has been on it pretty much since it came out for the general population and has stayed on it 28 days on/28 days off. Sometimes she just cultures staph or maltophilia, but she stays on tobi either way. About the Vests I don't see why you couldn't get 2 machines, that way if they were getting ready for school they could do it at the same time, I don't see why they would have to share them, How does that work with other people with 2 or more CF kids? love, M vest and mult cf kids I told the nurse we would like to look into getting Adam and Alec vests. She said that we could get away with 2 vests and 1 machine. For the families with mult cfers, is this the approach your family is taking? I understand the cost issue, but I was hoping the time issue would improve..After one round of Tobi and Cipro, Adam didn't culture pa this time. The clinic's position is one more round of Tobi and if he is neg again, Tobi will be stopped. I was told even though he didn't culture it, they may still be there and the thoart swap didn't pick it up. Is my clinic's approach to pa typical? W. , mom to Adam and Alec both 7 w/cf and 2 teenage sons w/o cf Quote Link to comment Share on other sites More sharing options...
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