HI- IM NEW TO THE LIST! (LOOONG)

March 15, 2003

HELLO- MY NAME IS KARI, IM VERY NEW TO THIS AND AM STILL CATCHING ON

TO ALL THIS INTERNET STUFF! I HAVE 2 CHILDREN BREAWNA-4 & DAVID-J

10MO., DAVID-J IS THE ONE WHO IS BEING SENT TO A CF CENTER BECAUSE HE

HAS ALL THE SYM. OF CF. IT IS IN THE FAMILY AND WE KNOW SO FAR HE IS

A CARRIER. WE ARE WAITING FOR THE RESULTS ON A TEST TO SEE MORE THAN

THE 25 MOST COMMON GENES THAT THEY HAVE ALREAD TESTED HIM FOR. HE HAS

HAD A NEG SWEAT TEST, BUT AS IM LEARNING FROM MANY CFERS ITS POSSIBLE

TO HAVE IT AND TEST NEG.MY HUSBAND AND I ARE BEING TESTED OURSELFS ON

MONDAY, AND AFTER HEARING ALL THESE STORIS HERE AND NOW GOING TO SEE

ABOUT GETTING MY DAUGHTER TESTED. MY BIG CONCERN IS HE(DAVIV-J) WAS A

BIG 9LBS BABY AT BIRTH AND NOW AT 10MO. JUST FINALLY HIT 15 LBS THIS

WEEK. I NEW HE WAS SMALL AND ONLY GAINING 1 OUNCE A WEEK, BUT I DIDNT

KNOW THE EFFECTS OF NOT GAINING INTILL I ASKED THE DR. HOW WORRIED

SHOULD I BE, AND HE SAID- WELL IT IS A CONCERN BUT I THINK HES

GETTING ENOUGH TO HIS BRAIN STEM. WHAT DID THAT MEAN? I LOOKED IT UP

AND IT SAID IT COULD EFFECT HIM MENTALLY AND PHYSICALY LATER IN LIFE,

IS THAT TRUE? AND SHOULD I BE REAL WORRIED? HE IS SUCH A GOOD EATER,

WHERE DOES IT ALL GO? WELL THANK YOU TORSTEN FOR INVITING ME TO THIS

GROUP, IT WOULD OF TOOK ME FOREVER TO FIND IT MYSELF, AND YOUR RIGHT

THIS IS MORE FOR ME! - KARI MOM OF BRE- NO-CF, DAVID-J CF?-CF CARRIER

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