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CF/MISC W/GRANDMOMBEV--HOWDEEEE

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HOWDEEEE YOU 'AL,

HOW ARE YOU'AL DOING THIS FINE 'WINTER " DAY?? I HOPE ALL THE ICE IS

STARTING TO MELT & THE RAINS HAVE SLOWED DOWN, & -STREETS CLEARING, &

SNOW SHOVELED AWAY

Maybe now everyone will be getting rid of the winter -or-whatever- colds

& feeling yucky type stuff!! I know it is time for most of us to feel

GOOD!!

I have been writing daily but to the indivual posts & so , it is now

that I am going to do some that I haven't gotten to and/ or will repeat

to some of you . sorry. I have some senior moments every once in awhile

& 'forget " ???, if I have answered or spoken too.

TARA. I am sorry about your reports but do know that all will be fine

soon. they are right on top of each thing. I am hoping to see you folks

when I come for the ED DAY on March 22nd.

I feel like I know you , your mom & aunt so well. with following your TX

in pictures & same with your family , It will be great to see you all in

person too!! take care, stay well ..

ClOYCE.. thanks for all the great updates . I hope to see you also at

the Ed Day . I am going to be going to many this year. if anyone reading

this knows if your center is have Family day, Ed day , whatever they

call it, let me know .Maybe it will be in /on our schedule OR can be put

on. take care now.

LISA. I know the med reports didn't thrill you , but they too are on top

of it & treatment is available. take it, stay well & I will see you all

soon. love to have time to visit with you all.

JOANNE SCHUMN.. I always enjoy your posts so much . I even print some of

the research info for files. Especially the one on Munchausen's " we

hear about that so much in the CF World .many clinicians mis Dx the

patients & then try to blame parents ... this is good info to have!! I

hope you & your sister are both doing well . celebrating each of you

having TX & doing well . Bless you both!!

LYNETTE. your books are in the mail .I did have some on shelf left. 2 in

fact , so yours are on their way :):) I hope they will help with the

others also.

KELLY P.. your wash hand buttons went out as well It is great that you

all are promoting this .It is for everyone's health.I sent you several

..let me know how the teachers respond.Bless you .I do hope all goes

well with Mathews teach too.If your ever near here. Stop in. by the way,

do you want to be on our ED DAY Committee, it isn't until Nov. 1st.?

call me at 407-898-427 ..

Really it only involves THAT day. Everything else is done.I sure would

appreciate that.

BOBBIE, I am so happy your home from hospital . sounds like you taken

care of business pretty good.maybe now you'll get your food on

time(since you will be getting it yourself :):):) Also pick what you

want too!!!hey, those Home heath care nurses you have there , sound

like they are right on top of everything GREAT!!! You'll be fine really

soon.

JULIE.. I loved those pictures you sent. I have 2 of them here in office

also .Everyone are tearing up laughing.. I don't know where these are

coming from -but they are gooders:):):)Oh, -What a great idea to have

your brothers shop do a fund raiser & get others in that field as

well--like all coffee money go to CF !!:):)

PEGGY D.. I hope you got the book it is a really nice one too. you might

have told me , sorry , By the way, Who is the doc in CHARLOTTE? My

granddaughter lives in ALBEMARLE .that's not far at all . BUT , she goes

to DUKE. that wasn't there when she was DX 19 years ago:):) She is up at

ASU now, so , BOONE is just as close to Durham as Charlotte ......I hope

all is going well for you there.I hear it is a very good center.

JESSICA L.. Your PG sounds like your doing really extra well. That is

sure going to be a big one. My granddaughter was 9 lbs. It might be

great to have the extra weight as all wee ones loose some after birth.I

am very excited for you .please do let us hear from time to time as you

can. have you picked a name for HIM yet?? :):)

SAM G..It appears your wee one had the same as my granddaughter did -or

similar. She had mecomium iliues . it is fairly common in CF births. she

too, had the surgery .She has now grown to 6 ft. --Is a cross county

state 1st placer & now in college doing all the skiing & snow boarding

she can fit in to her A graded class schedule . Your daughter will pull

out & do some of that as she gets older too!! You have many great

centers to try in south FL I am in Orlando, BUT know all of them very

well. I have the CF Pharmacy ,Inc & have for 18+ years(started for

ERIN). so, I have met them all & become friends to many . If you would

like any additional info , feel free to call me on my toll free ##

1- ..... that is open to anyone to call me .

ROSEMARY.. it was nice to hear things were getting smoother in your

precious home. I hope the kids are feeling better & all the " STUFF " at

clinics & hospital are over with & mending is ongoing.take care of you

as well. Remember , my offer. I'll keep the light on for you :):):)

Maybe you'll get that wish trip rescheduled soon.

MEGAN I hope this note finds all your dishes clean & put up . I really

think that is sooo neat.. Can I get one too :):):)I use paper plates

for lunch when I am home :):) I really cant stand dirty dishes

........You are so cool .Such a neat idea & also a germ free

procedure!!go get em gal & watch out for , she'll have her dishes

over there to be done as well :):)hehehe

DANIELLE I am happy your home now & I pray you'll stay really well .It

seems so good to have our nutty buddy on line with us ........love yaw!!

GRNDMOMDOLLY. thanks for letting me know you got your buttons .I know

you'll put them to great use. We NEED to bring CF 7 cross infection to

everyone's attention.If we don't do it------WHO WILL??? Again .Thanks

GREG Francis,, Nice to see you back on line. Sounds like you have been a

wee bit busy lately -or for past 3 1/2 years. that TX was wonderful . I

am very happy for you. I think I had spoken with you some years ago as

well.

If you ever get down this way, You better be sure & stop in. We would

love that.......Do you know the UPHOFFS?? they are a wonderful family

with 3 children who have CF & there are 2 cousins with cf .one per

sister of Jenn's.

I am sure you have seen Jen's posts here .She is truly a great help to

all of us. You know-been there -done that-as well as very medical smart

:):) keep posted & let us know your doing great...

ANDREA. I do hope your getting away from all the pain now & seeing the

light at the end of that tunnel . We want regular updates , ya hear thar

gal???

MARION R.. Nice that your getting settled in the ole homestead

now.Kinda feels like home now , right ? I sure hope so. no more pile of

steps I hope too.

it is nice that the weather is getting better , maybe with all your

broken this & that's :):):) -kiddin' you will enjoy a walk (or ride)

outdoors

TIFFANY R.. gal , you had better get that call soon. I am ready!!! you

need the break & the rest they will make you take.have you figured out

the child care yet.? Ask Abilities if they have sitter service for the

afternoons when the kids would be home from school /daycares.maybe

????? worth a try .How is the fund raising going .What is going?? let us

all hear. anything we can know about?? best wishes kiddo..

TRACY C..how is it going since I last wrote you last week. ?? I hope

better . By the way , have you seen or talked to Kathy or Rita ? I hope

Rita is getting better .I think she does need to be listed . I think she

said she was going to.have you heard?? Now, you go & rest..I think that

stress & sinus problems cause most of those with CF their headaches.

you need to have a chill out party :):):)-I'll come if there is great

food, etc:):hahahehe

VANESSA>. how is Mateo doing now. I know that Mommy is having a hard

time , but all will be worked out with those tests done. maybe that will

make him or help him start to gain some weight & then all of him feel

better too.Such a wee 11 months is so hard to let you know where & what

is wrong. Maybe a change in enzymes. have they tried the Pancrecarb...??

Ask them about that. .the bicarb takes the stomach pains out & the

enzymes then can do their job. They make the very small for the wee

ones too. God bless you & I do hope & pray all is better soon-real

soon!!

JEN U..WOW-that was a great package . As I said before .everyone her now

knows all your kids -and it seemed like some relatives & friends there

too. What water babies they are .they reminded me of mine at those ages

:):) great memories........you are so very sweet to send that I loved it

& am so proud & happy to have it !! you all are truly my TENN

GANG.......wow, What agang you are too:);) I love you all!!

JENNIE GIBSON... I hope your getting all the questions answered now

..Please try not to stress out , as you can see, it does take its toll on

you ( & anyone for that matter).....you are doing well. it has been

since 11-21-01 that you are with new lungs -YEAH!! soooo we need the

rest of you to be well & non-stressed. sooooooooo, I am putting you all

on my prayers chain.Anyone who wants off .let me know ........:):):)

SPRING is coming-, YES, I know it is .sooner or later .we are up to 74*

today .it is lovely.I love having that in the day, then down to 53* in

evening -great sleeping. So come on down:):):)

MEGAN J Good luck getting back at school .We are all pulling for you !!

love & hugs to you ...You can do anything you want when you make up your

mind to it .GO GIRL!!!

AGNES M . GOLLEE. You have had the ringer thrown at you this here

winter.I wont go thru the list , but I hope it is leveling out now. I

know it is when the ice/snow starts to melt:):) I know all are so

concerned about Allision. She is in my prayers -that's for sure. You all

are so take care.DRIVE carefully:):):)I'll keep the light on for you

too!

BECKI , FEEL BETTER GAL !! Them there is my orders!! right now !.

immediately !!. stat,!! today!! . now!! o O.K. --- Did I make my point

clear ?

We all are worried & we love ya.lil Goober Girl !! we want you ready

for that TX call!! soon ..................

MAUREEN. You know how we all feel . We are so saddened & feel for you in

your loss. We want you here with us .We do understand. yes, anytime you

want . we are here!! candles are lit for dear sweet

Noelle.................

RICHARD/ KATHY . I am so sorry to hear about the dreaded diabetes for

Kathy . gosh, that a low blow. letting us know how it all is going .I

have that booklet on Diabetes in the person with CF .I cant remember if

I did send to you . let me know if I didn't & you want it. RICHARD .

Your back on TX list aren't you ?/ I cant keep it straight with your

schedule :):):)

MARNIE, you sure came up with some great shopping ideas for the kids. I

will try that this weekend with e of my grandchildren I will have for

Friday night & part of Saturday . their folks are having a week-end date

:):):) so grandmommy has them. I love it !! thanks for the idea, We are

heading foot he Dollar store for sure.we have several kinds. the

regular DOLLAR STORE & THE DOLLAR GENERAL & THE FAMILY DOLLAR

STORE.Gosh , I can spend a week-hahaeheh. have a super week.

JILL . How is your weather now. Any rumbles lately . ?I bet your out on

that bike each day, despite the weather. o.K. I am really anxious about

your job shopping . I do hope you'll have some good news by the time you

read all this .IF you do read ALL of this. :) love ya. lights are on

here for you ...........

OOPS, I think I had better get this ended for now. I hope I don't have

to cut it in parts . I am not good at doing that . My two fingers get

mixed up -really

I love you all I am addicted to each list. So much info on all . So much

more to learn & know about in this changing CF world of ours.

LOVE & HUGS, grandmomBEV

_____

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