Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 HOWDEEEE YOU 'AL, HOW ARE YOU'AL DOING THIS FINE 'WINTER " DAY?? I HOPE ALL THE ICE IS STARTING TO MELT & THE RAINS HAVE SLOWED DOWN, & -STREETS CLEARING, & SNOW SHOVELED AWAY Maybe now everyone will be getting rid of the winter -or-whatever- colds & feeling yucky type stuff!! I know it is time for most of us to feel GOOD!! I have been writing daily but to the indivual posts & so , it is now that I am going to do some that I haven't gotten to and/ or will repeat to some of you . sorry. I have some senior moments every once in awhile & 'forget " ???, if I have answered or spoken too. TARA. I am sorry about your reports but do know that all will be fine soon. they are right on top of each thing. I am hoping to see you folks when I come for the ED DAY on March 22nd. I feel like I know you , your mom & aunt so well. with following your TX in pictures & same with your family , It will be great to see you all in person too!! take care, stay well .. ClOYCE.. thanks for all the great updates . I hope to see you also at the Ed Day . I am going to be going to many this year. if anyone reading this knows if your center is have Family day, Ed day , whatever they call it, let me know .Maybe it will be in /on our schedule OR can be put on. take care now. LISA. I know the med reports didn't thrill you , but they too are on top of it & treatment is available. take it, stay well & I will see you all soon. love to have time to visit with you all. JOANNE SCHUMN.. I always enjoy your posts so much . I even print some of the research info for files. Especially the one on Munchausen's " we hear about that so much in the CF World .many clinicians mis Dx the patients & then try to blame parents ... this is good info to have!! I hope you & your sister are both doing well . celebrating each of you having TX & doing well . Bless you both!! LYNETTE. your books are in the mail .I did have some on shelf left. 2 in fact , so yours are on their way :) I hope they will help with the others also. KELLY P.. your wash hand buttons went out as well It is great that you all are promoting this .It is for everyone's health.I sent you several ..let me know how the teachers respond.Bless you .I do hope all goes well with Mathews teach too.If your ever near here. Stop in. by the way, do you want to be on our ED DAY Committee, it isn't until Nov. 1st.? call me at 407-898-427 .. Really it only involves THAT day. Everything else is done.I sure would appreciate that. BOBBIE, I am so happy your home from hospital . sounds like you taken care of business pretty good.maybe now you'll get your food on time(since you will be getting it yourself :) Also pick what you want too!!!hey, those Home heath care nurses you have there , sound like they are right on top of everything GREAT!!! You'll be fine really soon. JULIE.. I loved those pictures you sent. I have 2 of them here in office also .Everyone are tearing up laughing.. I don't know where these are coming from -but they are gooders:):)Oh, -What a great idea to have your brothers shop do a fund raiser & get others in that field as well--like all coffee money go to CF !!:) PEGGY D.. I hope you got the book it is a really nice one too. you might have told me , sorry , By the way, Who is the doc in CHARLOTTE? My granddaughter lives in ALBEMARLE .that's not far at all . BUT , she goes to DUKE. that wasn't there when she was DX 19 years ago:) She is up at ASU now, so , BOONE is just as close to Durham as Charlotte ......I hope all is going well for you there.I hear it is a very good center. JESSICA L.. Your PG sounds like your doing really extra well. That is sure going to be a big one. My granddaughter was 9 lbs. It might be great to have the extra weight as all wee ones loose some after birth.I am very excited for you .please do let us hear from time to time as you can. have you picked a name for HIM yet?? :) SAM G..It appears your wee one had the same as my granddaughter did -or similar. She had mecomium iliues . it is fairly common in CF births. she too, had the surgery .She has now grown to 6 ft. --Is a cross county state 1st placer & now in college doing all the skiing & snow boarding she can fit in to her A graded class schedule . Your daughter will pull out & do some of that as she gets older too!! You have many great centers to try in south FL I am in Orlando, BUT know all of them very well. I have the CF Pharmacy ,Inc & have for 18+ years(started for ERIN). so, I have met them all & become friends to many . If you would like any additional info , feel free to call me on my toll free ## 1- ..... that is open to anyone to call me . ROSEMARY.. it was nice to hear things were getting smoother in your precious home. I hope the kids are feeling better & all the " STUFF " at clinics & hospital are over with & mending is ongoing.take care of you as well. Remember , my offer. I'll keep the light on for you :) Maybe you'll get that wish trip rescheduled soon. MEGAN I hope this note finds all your dishes clean & put up . I really think that is sooo neat.. Can I get one too :):)I use paper plates for lunch when I am home :) I really cant stand dirty dishes ........You are so cool .Such a neat idea & also a germ free procedure!!go get em gal & watch out for , she'll have her dishes over there to be done as well :)hehehe DANIELLE I am happy your home now & I pray you'll stay really well .It seems so good to have our nutty buddy on line with us ........love yaw!! GRNDMOMDOLLY. thanks for letting me know you got your buttons .I know you'll put them to great use. We NEED to bring CF 7 cross infection to everyone's attention.If we don't do it------WHO WILL??? Again .Thanks GREG Francis,, Nice to see you back on line. Sounds like you have been a wee bit busy lately -or for past 3 1/2 years. that TX was wonderful . I am very happy for you. I think I had spoken with you some years ago as well. If you ever get down this way, You better be sure & stop in. We would love that.......Do you know the UPHOFFS?? they are a wonderful family with 3 children who have CF & there are 2 cousins with cf .one per sister of Jenn's. I am sure you have seen Jen's posts here .She is truly a great help to all of us. You know-been there -done that-as well as very medical smart :) keep posted & let us know your doing great... ANDREA. I do hope your getting away from all the pain now & seeing the light at the end of that tunnel . We want regular updates , ya hear thar gal??? MARION R.. Nice that your getting settled in the ole homestead now.Kinda feels like home now , right ? I sure hope so. no more pile of steps I hope too. it is nice that the weather is getting better , maybe with all your broken this & that's :) -kiddin' you will enjoy a walk (or ride) outdoors TIFFANY R.. gal , you had better get that call soon. I am ready!!! you need the break & the rest they will make you take.have you figured out the child care yet.? Ask Abilities if they have sitter service for the afternoons when the kids would be home from school /daycares.maybe ????? worth a try .How is the fund raising going .What is going?? let us all hear. anything we can know about?? best wishes kiddo.. TRACY C..how is it going since I last wrote you last week. ?? I hope better . By the way , have you seen or talked to Kathy or Rita ? I hope Rita is getting better .I think she does need to be listed . I think she said she was going to.have you heard?? Now, you go & rest..I think that stress & sinus problems cause most of those with CF their headaches. you need to have a chill out party :)-I'll come if there is great food, etc:):hahahehe VANESSA>. how is Mateo doing now. I know that Mommy is having a hard time , but all will be worked out with those tests done. maybe that will make him or help him start to gain some weight & then all of him feel better too.Such a wee 11 months is so hard to let you know where & what is wrong. Maybe a change in enzymes. have they tried the Pancrecarb...?? Ask them about that. .the bicarb takes the stomach pains out & the enzymes then can do their job. They make the very small for the wee ones too. God bless you & I do hope & pray all is better soon-real soon!! JEN U..WOW-that was a great package . As I said before .everyone her now knows all your kids -and it seemed like some relatives & friends there too. What water babies they are .they reminded me of mine at those ages :) great memories........you are so very sweet to send that I loved it & am so proud & happy to have it !! you all are truly my TENN GANG.......wow, What agang you are too:) I love you all!! JENNIE GIBSON... I hope your getting all the questions answered now ..Please try not to stress out , as you can see, it does take its toll on you ( & anyone for that matter).....you are doing well. it has been since 11-21-01 that you are with new lungs -YEAH!! soooo we need the rest of you to be well & non-stressed. sooooooooo, I am putting you all on my prayers chain.Anyone who wants off .let me know ........:) SPRING is coming-, YES, I know it is .sooner or later .we are up to 74* today .it is lovely.I love having that in the day, then down to 53* in evening -great sleeping. So come on down:):) MEGAN J Good luck getting back at school .We are all pulling for you !! love & hugs to you ...You can do anything you want when you make up your mind to it .GO GIRL!!! AGNES M . GOLLEE. You have had the ringer thrown at you this here winter.I wont go thru the list , but I hope it is leveling out now. I know it is when the ice/snow starts to melt:) I know all are so concerned about Allision. She is in my prayers -that's for sure. You all are so take care.DRIVE carefully:):)I'll keep the light on for you too! BECKI , FEEL BETTER GAL !! Them there is my orders!! right now !. immediately !!. stat,!! today!! . now!! o O.K. --- Did I make my point clear ? We all are worried & we love ya.lil Goober Girl !! we want you ready for that TX call!! soon .................. MAUREEN. You know how we all feel . We are so saddened & feel for you in your loss. We want you here with us .We do understand. yes, anytime you want . we are here!! candles are lit for dear sweet Noelle................. RICHARD/ KATHY . I am so sorry to hear about the dreaded diabetes for Kathy . gosh, that a low blow. letting us know how it all is going .I have that booklet on Diabetes in the person with CF .I cant remember if I did send to you . let me know if I didn't & you want it. RICHARD . Your back on TX list aren't you ?/ I cant keep it straight with your schedule :) MARNIE, you sure came up with some great shopping ideas for the kids. I will try that this weekend with e of my grandchildren I will have for Friday night & part of Saturday . their folks are having a week-end date :) so grandmommy has them. I love it !! thanks for the idea, We are heading foot he Dollar store for sure.we have several kinds. the regular DOLLAR STORE & THE DOLLAR GENERAL & THE FAMILY DOLLAR STORE.Gosh , I can spend a week-hahaeheh. have a super week. JILL . How is your weather now. Any rumbles lately . ?I bet your out on that bike each day, despite the weather. o.K. I am really anxious about your job shopping . I do hope you'll have some good news by the time you read all this .IF you do read ALL of this. love ya. lights are on here for you ........... OOPS, I think I had better get this ended for now. I hope I don't have to cut it in parts . I am not good at doing that . My two fingers get mixed up -really I love you all I am addicted to each list. So much info on all . So much more to learn & know about in this changing CF world of ours. LOVE & HUGS, grandmomBEV _____ <http://promos.hotbar.com/promos/promodll.dll?RunPromo & El=hotbar%5feleme nt%3bst%3b & SG= & RAND=64502> Upgrade Your Email - Click here! Quote Link to comment Share on other sites More sharing options...
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