RE: NICE SCHOOL TEACHERS/JULIE

[Guest guest]

I loved your account of the nice teacher--such a blessing--and such a

salvation for all, really! Our child wcf (well, is an adult now) was

literally

saved and enabled to attend public school here by really great teachers!

Love to you two, Liam, Eilish and Eilish's teacher!

n Rojas

[Guest guest]

I think it is wonderful that you have such great teachers that work with

your child and your childs medications that is wonderful and I hope for you

that it continues though there middle school and high school years. As for

us we have a remarkable child ummm adult (he is 17 will be 18 in 5

months) he did very well thought out his elementary school and because I

worked at that school we had not one problem with his enzymes or other meds

until he was in 5th grade and was hospitalized and when i approached the

principle about getting him a home bound teacher that is required by law if

your absent from school for 5 days in a row. he the principal said that

since it was such a small amount of time that it was not really necessary

well maybe it was not but it was my childs right to have an education as

well as the rest. We continued to have this problem thought his middle

school years (6ht - 8th grades) when he was off school and in the hosp he

made up the work himself stayed on the honor roll and kept ups with his

class (now that was one determined child) then in the 9th grade he did very

well even health wise at the end of the year we went o honors night and he

came home with 7 awards one for each class and he was again on the honor

roll and carried a 3.77 gpa not bad for a 14 yr old, then in the 10th

grade the subjects get harder he was hospitalized again no help he had to

make up and keep up he lost all hope and began to hate school his gpa

dropped way low and no matter what i did i got no where. he is now in his

12 year and in 2 months he will be finished with high school he has brought

his gpa back up to a 3.5 and he is ranked 97th in a class of 246 and he

has done this all on his own. it is a really sad thing that these teachers

do not see what our children go thought every day... a week ago DJ started

coughing up blood and was once again put in the hosp for a few days and

came home on iv's so once again he has work to make up. it is a shame that

our school system can not see what i children go thought each and every day

maybe then they would be more apt to work with the parents...we have just

had some very bad experiences with the schools here that i have vowed to

not let it happen to another child with CF i will work with the parents to

fight the school for the proper education for there child

hugss

mother of DJ 17 ym/wcf

[Guest guest]

,

Eilish stay's in the same college until year 13 (18years old). So we

are lucky there. We wont have to keep going through it all. That's why

I posted about it. I know alot of people on this list seem to have

problems with Ed. Dept. over silly little things. It made me thankful

for what we have.

(Australia)

Re: NICE SCHOOL TEACHERS/JULIE

I think it is wonderful that you have such great teachers that work with

your child and your childs medications that is wonderful and I hope for

you

that it continues though there middle school and high school years. As

for

us we have a remarkable child ummm adult (he is 17 will be 18 in 5

months) he did very well thought out his elementary school and because

I

worked at that school we had not one problem with his enzymes or other

meds

until he was in 5th grade and was hospitalized and when i approached the

principle about getting him a home bound teacher that is required by law

if

your absent from school for 5 days in a row. he the principal said that

since it was such a small amount of time that it was not really

necessary

well maybe it was not but it was my childs right to have an education as

well as the rest. We continued to have this problem thought his middle

school years (6ht - 8th grades) when he was off school and in the hosp

he

made up the work himself stayed on the honor roll and kept ups with his

class (now that was one determined child) then in the 9th grade he did

very

well even health wise at the end of the year we went o honors night and

he

came home with 7 awards one for each class and he was again on the honor

roll and carried a 3.77 gpa not bad for a 14 yr old, then in the 10th

grade the subjects get harder he was hospitalized again no help he had

to

make up and keep up he lost all hope and began to hate school his gpa

dropped way low and no matter what i did i got no where. he is now in

his

12 year and in 2 months he will be finished with high school he has

brought

his gpa back up to a 3.5 and he is ranked 97th in a class of 246 and he

has done this all on his own. it is a really sad thing that these

teachers

do not see what our children go thought every day... a week ago DJ

started

coughing up blood and was once again put in the hosp for a few days and

came home on iv's so once again he has work to make up. it is a shame

that

our school system can not see what i children go thought each and every

day

maybe then they would be more apt to work with the parents...we have

just

had some very bad experiences with the schools here that i have vowed to

not let it happen to another child with CF i will work with the parents

to

fight the school for the proper education for there child

hugss

mother of DJ 17 ym/wcf