Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Hi , Yes she told me up to 50,000. The nurse told me they might want to send it off to town, then the dr. came in and and told me that the test they did only tested 82 and I asked about testing for all of them because I am worried that (IF) its not CF then what if their missing somthing. She said its hard to get the ins. co. to approve the test of all the genes, it cost in her words (thousands and thousands of dollers up to 50,000). They are talking about enzymes and are waiting for that fecal fat test. He only weights 16.1 and he's almost 1 and weighed 9lb at birth. Each mo. he only gains ounces never pounds. I have another question- Do all pw/cf have frequent B.M's because -J only has 2 a day but they are very smelly ( not normal). Well thanks for the help- Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Most babies with cf are born pancreatic sufficient, meaning that the enzymes that their bodies make do get to the right place to digest food. Over time, though, the majority of individuals with cf lose this ability due to thickening mucus blocking the path the enzymes must travel to get to the food. Some people with cf are pancreatic sufficient, though, and never require prescripton enzymes at all. Malabsorption can be seen (and smelled) in the stools and poor weight gain is the main result. Vitamin deficiencies also occur. You might want to check your local library for the book, " Cystic Fibrosis A Guide for Patient and Family " by M. Orenstein. It has a wealth of information about cf. ~ > I have another question- Do all pw/cf > have frequent B.M's because -J only has 2 a day but they are > very smelly ( not normal). Well thanks for the help- Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Most babies with cf are born pancreatic sufficient, meaning that the enzymes that their bodies make do get to the right place to digest food. Over time, though, the majority of individuals with cf lose this ability due to thickening mucus blocking the path the enzymes must travel to get to the food. Some people with cf are pancreatic sufficient, though, and never require prescripton enzymes at all. Malabsorption can be seen (and smelled) in the stools and poor weight gain is the main result. Vitamin deficiencies also occur. You might want to check your local library for the book, " Cystic Fibrosis A Guide for Patient and Family " by M. Orenstein. It has a wealth of information about cf. ~ > I have another question- Do all pw/cf > have frequent B.M's because -J only has 2 a day but they are > very smelly ( not normal). Well thanks for the help- Kari Quote Link to comment Share on other sites More sharing options...
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