Oprah-SPREADING THE WORD-PLEEEEEEASE READ

April 16, 2003

Hello - I would just like to say that I did email Oprah as well as

Dr . phil since they are some what connected, and I think it would be

great if they would do a show to get the word of CF out there but I

just feel it wont happen. Rosie O'donnel has a nephew w/ Cf and I

watched her show from the very beggining and I cant remember her ever

haveing a show on CF! If the aunt of a child w/ cf wont do a show on

it then my hopes are not up on a stranger of the disease doing a show

on it. I will still keep writeing the Oprah show in hopes that she

will get the word of cf out there but I am very doubtful! I think the

word needs to be spread- more so in my case since the drs. are

telling me my son has CF and Im just now learning what it is and my

husbands sister hasCF also and Iwas never told much about the disease

because it was a hush hush topic. I had 7 miscarrages in the course

of my 2 children and still was never told much about the cf in the

family. I guess Im part to blame because I never took it upon myself

to learn about my sister inlaws disease since they kept it so

personal intill they said my son has it. So I think the word

definitly needs to be out there. I asked my husband when he learned

about his sisters disease and how his parents told him since we have

a 4 yr old that Im worried about and he said he didnt even know his

sister had a disease that she could die from intill he was 19 and he

is the youngest. He never new that he could be a carrier (which he is

intill our son got sick) I think thats sad that even his family dont

know! When I told his sister I thought that he(my husband) should of

been told this info- she told me that she had Cf and didnt know what

it was intill she was 18 and started going to a cf clinic, because

her mom never took the time to learn about cf!! THAT IS SOOO SAD TO

ME!!!!!So I do hope that the word gets out there soon!!!!!! People

need to be aware of the disease since its not so uncommon as people

say!!!! Sorry to rammble-Im just frusterated that my sons case cant

be confirmed! Thanks Kari

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