Re: vest and mult cf kidsplus anyone worry about ports and vests?

[Guest guest]

Odd, when they ordered the vest for Mallory ( already had his)

we specifically said we only wanted the vest, not the machine, and

they still tried to give us the machine. geez, we didn't want to pay

the 60% copay we had at the time on the dang dme coverage. so, in

our case, one machine, two vests. jojo is still way too little for

the vest.

on the vest topic, anyone else out there paranoid about it destroying

lines in the ports? after joshua had two failed ports, and both were

line failure, not clots or anything anyone could have done, actual

holes in the line, I became suspicious that it was the vest and

reverted to good ole cpt (I know where the line is tunneled under the

skin) it also made me paranoid about letting anyone else (ie camp)

do cpt on him. anyone else out there with these worries?????

Jen

Mommy of 7, 3 with CF

> Hi ,

>

> We are finding that most insurances will cover it that way. They

consider a

> second device as a " convenience " and not medically necessary.

About the

> only time they will cover a second device is when a sibling leaves

the home

> permanently, e.g. goes to college, moves into their own place,

etc. Other

> than that, we have not had any success in convincing them of the

need.

>

> I know this doesn't help much, but I hope it answers your question.

>

> Randy

>

> vest and mult cf kids

>

>

> I told the nurse we would like to look into getting Adam and Alec

vests.

> She said that we could get away with 2 vests and 1 machine. For the

> families with mult cfers, is this the approach your family is

taking? I

> understand the cost issue, but I was hoping the time issue would

> improve..After one round of Tobi and Cipro, Adam didn't culture pa

this

> time. The clinic's position is one more round of Tobi and if he is

neg

> again, Tobi will be stopped. I was told even though he didn't

culture

> it, they may still be there and the thoart swap didn't pick it up.

Is my

> clinic's approach to pa typical?

> W. , mom to Adam and Alec both 7 w/cf and 2 teenage sons w/o

cf

>

>

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WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

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