Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Dear Jody, First, please do not think I am trying to fight here. I am only reflecting on what makes since to me and my family, and piecing together what makes since to us. Not yours, or anybody else, just ours. The reason there isn't a test to test for this, is because when the vicious cycle gets going Elaine said that it is a T cell response and not a IgG, IgA or IgE response. This is not a typical allergy response. The vicious cycle causes all sort of problems that cause food sensitivities and odd behaviors. Therefore many food intolerance tests or allergy testing, would be a bad predictor of this type of problem. The casomorphine test is a waste of time too, if one is eating the SCDiet only...because the casein can not turn into casomorphine if it is " rendered harmless " during the 24 hour incubation process of making SCD yogurt. I truly do not know about the cheeses yet. Much of this information is in BTVC the chapter Autisms Connection in the BTVC book. Pg 54 -55 explain what is truly causing the behavior problems. If the casein is rendered Harmless in the 24 hour scd yogurt...then this would mean it is not the casein...but don't doubt other things could be having problems with the SCD dairy that could be causing some problems in the beginning for some. It could be a " vicious " die off reaction being blamed on casein. Since this too causes strange behaviors. This is why a tiny bit works....causes less die off, therefore less behavior problems thanks to die off. I have been reading countless testimonies trying to make since out of what road to go down. This information is taken from testimony not my own " hat " . The thing is, the goat yogurt has been recognized by others as helping their autistic children as one of the most important parts of this SCD formula to bring back their kids...or at the minimum bring great improvement. When milk is fermented the casein is rendered harmless....this statement does not come from me...it come from Elaine...I am just the " messenger " ....and like I said before with the enzyme dispute....it is always the messenger that ends up getting shot. Fair our not....I don't want to be in the line of fire anymore! Please, go argue with those who knew Elaine better than me. Don't argue with me. There are more than one " SCD old timer " behind my knowledge...by the way. So don't assumed who told me this information. There where several helping us.....you included, and I still genuinely enjoyed our conversations, and the time you have spent working with us. Thank you. Sincerely, Antoinette a.. Visit your group " pecanbread<http://groups.yahoo.com/group/pecanbread> " on the web. b.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 I am not participating in any fights. Someone asked about dairy and autism. I merely responded with what I have seen. Most ASD kids do not tolerate cow's milk products. Some do tolerate goat's milk products. Others tolerate neither. This isn't a debate, just a reflection of what I've seen on the list. That doesn't make this list representative of all ASD people. But since I don't know all ASD people, I can only answer based on what I've seen. I can tell you that I'd love to start using either organic fresh or even store-bought organic cow's milk and organic cow cheese. I'd be able to afford to allow my kids to eat more yogurt than they do right now. Organic cow's milk is about $5 a gallon here. Whereas goat's milk is $4 a quart (making it $16 a gallon). I could let them have 3 times as much yogurt as they get now and about 2-3 times as much cheese for the same price if I could give them cow's milk products. Hopefully, one day that will happen. But it doesn't seem that it has happened for them yet. Jody mom to -7 and -9 SCD 1/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Dear Jody, We feel more comfortable with the easy to digest goat milk/scd yogurt too. I too wish it was cheaper. I don't know if we will ever use the cow... After this last die off, we are doing so much better. KiKi is talking more than ever...trying to do things that are truly amazing us. It is amazing how when you kill off those bad gut bug what happens with these autistic children. That is cool that you don't want to " fight " ...so many seem to be butting heads with me right now. I truly don't know why. I am Just sharing what Elaine and S.V. Haas said. Plus our families testimony. That is all. It is not fair that the " messenger always ends up being the one who gets shot " . Sincerely, Antoinette a.. Visit your group " pecanbread<http://groups.yahoo.com/group/pecanbread> " on the web. b.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 The only problem with this, you cannot decide treatment based on testimonies and opinions. You have to get in there and start researching, doing proper and thorough eliminations and reintroductions. Food philosophizing only goes so far. In a way, it doesn't matter what anyone says, anyone's testimonies, there is observation. I agree with Jody, one can tell much about what one can tolerate by elimination and careful reintroduction, the knowledge gained, especially from the " slip ups " will point you in the direction you need to go. I agree, food sensitization tests are a bad predictor of the problem, they cannot predict any problems. It doesn't address the root causes of heavy metals, vaccination damage, low omega 3's in the diet, etc. One of the best at home methods for discovering food sensitivities is to develop a base line through a proper elimination diet (intro prolonged) and reintroduce foods one by one, getting a feel for the food/supplement/etc. An example of this, my son Hunt is sensitive to the cow casein in SCD yogurt, but not the goat casein in SCD yogurt. While a test may not have been able to predict accurately this scenario, getting in there and doing the food sleuthing did, and cannot be skipped over. Another observation, there is zero reaction to goat milk, even before being " rendered harmless " when I go down the road to pick up goat milk milked just that moment, from organic pastured goats. This is territory not covered by Elaine, not covered by the tests, but covered by pure observation. The goat milk, even at speciality food stores like Trader Joe's and Wild Oat's, produces a small reaction. So, one can hypothesize, where the goat milk came from, how fresh, the health of the animal, what they eat, how much sun they get, all these factors add up to a big significance when it comes to what Hunter can consume without reaction. There is philosophy, but then there is some degree of research and actual footwork that one must do, on their own. No one can tell you what to do, which path to go, how to go, but everyone will sure try. The confusion starts to clear when get to working. Summer Bunce wrote: Dear Jody, First, please do not think I am trying to fight here. I am only reflecting on what makes since to me and my family, and piecing together what makes since to us. Not yours, or anybody else, just ours. The reason there isn't a test to test for this, is because when the vicious cycle gets going Elaine said that it is a T cell response and not a IgG, IgA or IgE response. This is not a typical allergy response. The vicious cycle causes all sort of problems that cause food sensitivities and odd behaviors. Therefore many food intolerance tests or allergy testing, would be a bad predictor of this type of problem. The casomorphine test is a waste of time too, if one is eating the SCDiet only...because the casein can not turn into casomorphine if it is " rendered harmless " during the 24 hour incubation process of making SCD yogurt. I truly do not know about the cheeses yet. Much of this information is in BTVC the chapter Autisms Connection in the BTVC book. Pg 54 -55 explain what is truly causing the behavior problems. If the casein is rendered Harmless in the 24 hour scd yogurt...then this would mean it is not the casein...but don't doubt other things could be having problems with the SCD dairy that could be causing some problems in the beginning for some. It could be a " vicious " die off reaction being blamed on casein. Since this too causes strange behaviors. This is why a tiny bit works....causes less die off, therefore less behavior problems thanks to die off. I have been reading countless testimonies trying to make since out of what road to go down. This information is taken from testimony not my own " hat " . The thing is, the goat yogurt has been recognized by others as helping their autistic children as one of the most important parts of this SCD formula to bring back their kids...or at the minimum bring great improvement. When milk is fermented the casein is rendered harmless....this statement does not come from me...it come from Elaine...I am just the " messenger " ....and like I said before with the enzyme dispute....it is always the messenger that ends up getting shot. Fair our not....I don't want to be in the line of fire anymore! Please, go argue with those who knew Elaine better than me. Don't argue with me. There are more than one " SCD old timer " behind my knowledge...by the way. So don't assumed who told me this information. There where several helping us.....you included, and I still genuinely enjoyed our conversations, and the time you have spent working with us. Thank you. Sincerely, Antoinette a.. Visit your group " pecanbread<http://groups.yahoo.com/group/pecanbread> " on the web. b.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Hello, I just joined the group and I appreciate hearing about people's experiences. Our daughter has improved on goat's milk, although admittedly there could be other reasons for the improvement, and she is not completely well yet. Goat's milk casein is closer to human milk casein than cow's milk casein is. I've also read that cow's milk casein is not rendered completely harmless (denatured) by fermentation. People can still have a reaction to it, although the reaction is reduced. It's also true that people are different, of course, and will react differently. So it comes down to personal experience and preference, I think. Personally, I'd rather reduce the risk and just use goat milk and goat yogurt. > Dear Jody, > > First, please do not think I am trying to fight here. I am only reflecting on what makes since to me and my family, and piecing together what makes since to us. Not yours, or anybody else, just ours. > > The reason there isn't a test to test for this, is because when the vicious cycle gets going Elaine said that it is a T cell response and not a IgG, IgA or IgE response. This is not a typical allergy response. The vicious cycle causes all sort of problems that cause food sensitivities and odd behaviors. > > Therefore many food intolerance tests or allergy testing, would be a bad predictor of this type of problem. The casomorphine test is a waste of time too, if one is eating the SCDiet only...because the casein can not turn into casomorphine if it is " rendered harmless " during the 24 hour incubation process of making SCD yogurt. I truly do not know about the cheeses yet. > > Much of this information is in BTVC the chapter Autisms Connection in the BTVC book. Pg 54 -55 explain what is truly causing the behavior problems. > > If the casein is rendered Harmless in the 24 hour scd yogurt...then this would mean it is not the casein...but don't doubt other things could be having problems with the SCD dairy that could be causing some problems in the beginning for some. It could be a " vicious " die off reaction being blamed on casein. Since this too causes strange behaviors. This is why a tiny bit works....causes less die off, therefore less behavior problems thanks to die off. > > I have been reading countless testimonies trying to make since out of what road to go down. This information is taken from testimony not my own " hat " . The thing is, the goat yogurt has been recognized by others as helping their autistic children as one of the most important parts of this SCD formula to bring back their kids...or at the minimum bring great improvement. > > > When milk is fermented the casein is rendered harmless....this statement does not come from me...it come from Elaine...I am just the " messenger " > > ...and like I said before with the enzyme dispute....it is always the messenger that ends up getting shot. > > Fair our not....I don't want to be in the line of fire anymore! > > Please, go argue with those who knew Elaine better than me. Don't argue with me. There are more than one " SCD old timer " behind my knowledge...by the way. So don't assumed who told me this information. There where several helping us.....you included, and I still genuinely enjoyed our conversations, and the time you have spent working with us. > > Thank you. > > Sincerely, Antoinette > > > a.. Visit your group " pecanbread<http://groups.yahoo.com/group/pecanbread> " on the web. > > b.. Quote Link to comment Share on other sites More sharing options...
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