Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 Hi Shelley! It's Fliss again! I can't honestly make any useful comment on your case as it's so different from my own, as you know, but I do think an experienced pancreatic specialist could be very important for you now. Have you thought about asking your GP or gastro to refer you to the nearest panc specialist team/consultant? (I suspect that any of the sepcialists you've written to would require a formal referral anyway?) It's everyone's right to have another opinion. My own gastroenterologist at the RLH discussed my case fully with me but also referred me at once to the pancreatic team here. In terms of specialists, Tony Crispin, the UK PAI rep might be able to help, or Jim Armour who runs the other board (Pancreatitis Supporters' Network) we've posted on. Jim lives in Birmingham and Tony " somewhere down south " !! Sorry to be so vague! Tony has been very supportive of me since my diagnosis. Your own gastro should know the sepcialists anyway but Tony or Jim might have further info. on ones in your area or nearby. I do hope you get a satisfactory response very soon, Shelley and that other PAI members with similar experiences to yours may be able to reassure you in the meantime. They've been great with me! Love and best wishes. Fliss Quote Link to comment Share on other sites More sharing options...
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