Hello Again!

[Guest guest]

Hello again,

Right this is my story, I will try and keep it brief!!!

I have had abdominal pain pretty much all my life. This was always

put down to recurrent UTI's. Looking back now though my pain was

always upper abdo pain!

About 4 years ago I woke one night (I can still remember the time

aswell) with severe pain and feeling really sick. I went straight to

the emergency GP and yet again I had a UTI. This pain kept happening

and only usaully lasted about an hour but afterwards it felt like I

had done ten rounds with Lennox ! I was always sick or felt

very nauseas when the pain was bad.

Anyway, eventually I was sent to A & E where I was asked if I drank

alot of booze! (as many of us are asked). Yes I am only 23 and

before this pain started like every other 23 year old I used to go

out at the weekend but I wouldn't of said I drunk that much!

I was told that I had Fatty Liver and 'sludge in my gallbladder'.

Given antibiotics, told I may need my gallbladder out if symptoms

persisted.

I got admitted to hospital another 7 times (I think) when they

decided that all my problems were being caused because of Umbilical

Sepsis (I had alot of puss etc coming from my belly button! Nice

huh?). I had emergency surgery to remove it and sent home. 2 days

later I was back in, same pain but then told I had Colitis from all

the antibiotics I had been giving.

Finally had my gallbladder out in 2001 after a few attacks of acute

pancreatitis. The surgeon told me it was due to SOD and taking my

gallbladder may not help! He also mentioned to my Mum about pancreas

divisum but nothing has been said about that since and I'm sure if

it was that they would have found it in my last ERCP.

Last December I had another ERCP and a sphincterectomy (the Dr

accidently cut my bile duct aswell during the procedure!). I had

eternal bleeding, acute infected pancreatitis and a psuedocyst, and

also couldn't breath without oxygen for 2 weeks.

I still have pain and nausea everyday and have been told at my

hospital that they are not going to try anything else e.g stents etc

because of what happened last time. My lipase/amylase are OK

(haven't heard that before have you?..lol). They have told me I

definately have SOD. I take Dihydrocodeine for pain (not that it

helps alot), Cyclizine and Buccastem for nausea, Questran for

diahrea and recently been given a GTN spray which also did not help.

I have written to some Pancreatic specialists for their opinion (my

Dr is a general gastro Dr). I really want to get back to work

(haven't worked since Dec) and basically completely fed up! Like all

of us in similiar positions. I'm sure I've probably forgotten stuff

and if you've read my story before I apologise for putting you

through it again!

Thanks for listening and I hope I'll be able to help some of you

guys in the future.

Hope you're having pain free days,

Hugs from

Shelley

P.S I have been reffered to a Pain Clinic as my gastro Doc doesn't

think my pain meds are strong enough..my appointment is Jan 04!!