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Updat on 's clinic visit

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Hi all,

's clinic visit yesterday was OK. Not great but not bad either. She grew

an inch but only gained .3 kilos (about 9 oz). We were hoping for more but at

least she didn't loose. Anyway we won't be decreasing the tube feeds any time

soon. Her Doc wasn't too concerned with the gagging and vomiting she did Monday

night with the tube feed. If it continues or becomes a more consistent thing,

He'll put her back on the reflux meds. was not co-operative with the PFT

(lung function) test. that is pretty unusual, she usually likes to do it but

she wasn't following the directions too well yesterday. The good news is that

will be finished taking the bactrum (oral antibiotic) after this month.

She will continue on the Tobi every other month. I even remembered to find out

what cultured in the last sputum test. Staff and Pseudomonas. The same

things that she always has. We will do another test next visit because that one

was from October. I am still waiting on word about the medpulse vest. the

insurance company is dragging it's feet. We are supposed to hear something this

week about it. That's about it.

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