Hi, --good post, in response to Toni

[Guest guest]

I am (or was when I arose this morning!) n Rojas, wcf, CFRD.

I do very well on whole milk, yogurt, some cheeses, most all milk pro

ducts. However, my middle child--mine are all carriers, including the

one wcf, too--is both lactose (one of the sugars in milk) and galactose

(one of the other ones) intolerant AND allergic to milk. The rest of us

could keep the cows in our state going strong. The one who is allergic

to milk develops asthma, coughing, hives, itching and heaven only knows what

else. It IS a myth that milk produces mucus. However, if

one is milk sugar intolerant, one has the same type of steatorrhea as

do most of us with cystic fibrosis and there is no rule that says that you

cannot have the whole bag of tricks. I think the myth arose from the all

ergy thing. There are many ethnic populations, usually not originating in

Westerrn Europe that are congenitally lactose and/or galactose intoler

ant, whereas allergy can hit anyone.

That said, it is also the case that milk sugar intolerance is not to the fats

in dairy products, but to the milk itself, and the more fat they take out,

the more lactose and galactose there is in and vice-versa. Cfeam, milk

fat, butterfat, do not have milk sugars in them except very minimally in

the usa where we add milk powder to our butter--do not ask me why---

makes Danish butter a bargain for those folks. Most of us with cystic

fibrosis have trouble with the fat, which causes steatorrhea, or what ap

pears to be diarrrhea but is actually excretion of fat through failure to ab

sorb it into the gut and digest it.

I think you did a very wise thing in consulting your dietician, and the rest

will just be up to you to see what works and what doesn't. As a last re

sort, allergy elimination diets can be tried under the guidance of an aller

gist, but usually one just goes by what works for the individual.

For me, I cannot even think about lobster, crab or scallops--all of which

I adore, without having true diarrhea, where water leaves the gut. My

middle one uses soy products and other protein products such as gluten, and

the obvious, meat, fish (which she can eat) and shellfish for

protein. There is also a product called Rice Dream which is fortified with

more than the A, D, and calcium in milk which works for many.

Teach YOU to put an issue to this list!!!!!

Love and good luck to Toni and to you,

n Rojas, wcf, CFRD, who has been round robin with this with the

NON-cf kids!