OT Evaluation For Therapy on Tuesday/ VENT

May 12, 2006

Hey fellow mom's and dad's,

I just found out that Eight people are going to be in the evaluators

room on Tueday when the District Evaluates KiKi for Early

Intervention Programs through the state. TWO hour evaluation with an

autistic 2 year old who is healing from celiac disease.

Has anybody else had this number of people in the room??? Is she a

celeberty or " freak show " ? It is pissing me off a bit none the

less. IT seems that everyone is interested in her AUTISM, and they

have missed teh CHILD already and we are not even there.

I have put call in to decrease this number of people, no one has

returned my phone call yet. How do you advocate for your child

when " well intentioned " people " gang " up on you with their opinons

of what needs to be done and all their RED TAPE and protocol???

I had origionaly asked for the elvaluation to take place in the

home. Knowing her " special needs " and personality this in itself

would have been a chalenge but not as bad. I was told unless she

was medicaly fragile that they would not do this. I told them that

more than likely that although improved in last 2.5 months on

special SCDiet, that she will Still SHUT DOWN (her way of vanishing

and coping with HIGH STRESS) if we try this out side the home...and

that this has happened before when we had her evaluated for

before....they did not care.

The Dan! said let them see her shut down and have her problem. That

they need to see it. I say this is a bunch of c*** because this is

not who she is in the home. And a two year old doesn't need to be

woryying about the " real " world....autistic or not. There is time

for this when she is older and more healed.

I am ready to cancel the entire thing! But this could offer her

state paid speech and other therapy. They even do horse therapy,

and since she opens up with animals I thought this would be good

fore her.....

I feel a little upset right now. Do others have any experience

strength and hope???

If windy e-mail me personaly ajbunce@...

Thanks ahead of time, Antoinette

(mother of 2 year old KiKi/celiac/injured intestines that resulted

in Autism)

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