Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 For Nana Sharon: There is a list for CF-parents in spanish: l-fiqui I am spanish and I have a daugther 12 yo wcf. > Date: Sun, 25 May 2003 22:03:07 -0000 > > Subject: Need common sense tips to reduce pseudomonas exposure -- Spanish & English > > Hi, I'm a grandmother who's new here. > > Also, ' mom is from Guatemala, and although she speaks English > quite well, is not comfortable reading it a great deal. She had never > even heard of CF until I guessed at the diagnosis and it was > confirmed. (There is no history behind either of the very large > families.) The few materials she was given printed in Spanish (about > CF in general) were VERY insufficient. She has had a lot of > unnecessary anxiety caused by not being quite sure she understood > everything that she was being told. When was about 18 mos., the > clinic finally realized this and began to bring in a secretary to > translate. Since then, we have been blessed with some interns and > residents who have been VERY helpful. > > Even though we've searched, it seems that is the only CF child > in OK of Hispanic heritage on one side. We have not been able to > find another parent who speaks Spanish or a support group for my > daughter-in-law. She's doing a remarkable job, but I know having > someone to write to or converse with in Spanish would make things a > little easier. > > " Nana Sharon " Quote Link to comment Share on other sites More sharing options...
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