Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 I just want to thank everyone who has responded to my search for Spanish speaking parents of CF kids. I now have quite a number of people and web sites to contact. All I have to do now is convince that she CAN use the " web " (she'll either have to use my computer or we'll have to get her one, so it may take a little while), but just knowing that all these resources exist is simply wonderful. Now, the PA. Yes Jan, it does grow in the screens in the aerators. I've now removed mine. Our nurse also told me about the shower heads which also allow the bacteria to become somewhat aerosolized when they are turned on. Since loves showers, I'm going to fix one shower head so I can easily remove it and replace it with one that has been thoroughtly sanitized for her. I still worry about her visiting where there are tropical fish aquariums, although they are " healthy " , covered, aquariums (fish with pseudomonas show definite signs). I really want to learn more about this. But am not finding too much info. I did find that it is more of a problem in salt water aquariums, just the opposite of what I would have thought! We were initially worried about my birds, but the Drs. say as long as they're healthy, they're OK (of course loves them too). Since birds have very delicate respiratory systems, it's very easy to spot an illness (pseudomonas in them causes respiratory symptoms almost immediately). I do use hepa filters for " dust " control(had them for the birds respiratory health BEFORE was born). I still would like to know what precautions people take with the kids playing OUTSIDE. Are most water sports (aside from well treated swimming pools) totally " off limits " . What about trips to nurseries or greenhouses to buy yard plants? Are a large number of potted house plants a danger? If a " mulching " mower is used on the lawn, doesn't the decaying " mulch " create a danger in play areas? What about children's sandboxes that are outside? I could go on all night, but where do you draw the line between common sense and making life miserable for everyone? " Nana " Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 In the meantime , perhaps you could go to the sites & PRINT much info for her. Especially ones you would know would help her or be of interest to her needs. You are a great friend. She will know this too. LOVE & HUGS, grandmomBEV Thanks everyone I just want to thank everyone who has responded to my search for Spanish speaking parents of CF kids. I now have quite a number of people and web sites to contact. All I have to do now is convince that she CAN use the " web " (she'll either have to use my computer or we'll have to get her one, so it may take a little while), but just knowing that all these resources exist is simply wonderful. Now, the PA. Yes Jan, it does grow in the screens in the aerators. I've now removed mine. Our nurse also told me about the shower heads which also allow the bacteria to become somewhat aerosolized when they are turned on. Since loves showers, I'm going to fix one shower head so I can easily remove it and replace it with one that has been thoroughtly sanitized for her. I still worry about her visiting where there are tropical fish aquariums, although they are " healthy " , covered, aquariums (fish with pseudomonas show definite signs). I really want to learn more about this. But am not finding too much info. I did find that it is more of a problem in salt water aquariums, just the opposite of what I would have thought! We were initially worried about my birds, but the Drs. say as long as they're healthy, they're OK (of course loves them too). Since birds have very delicate respiratory systems, it's very easy to spot an illness (pseudomonas in them causes respiratory symptoms almost immediately). I do use hepa filters for " dust " control(had them for the birds respiratory health BEFORE was born). I still would like to know what precautions people take with the kids playing OUTSIDE. Are most water sports (aside from well treated swimming pools) totally " off limits " . What about trips to nurseries or greenhouses to buy yard plants? Are a large number of potted house plants a danger? If a " mulching " mower is used on the lawn, doesn't the decaying " mulch " create a danger in play areas? What about children's sandboxes that are outside? I could go on all night, but where do you draw the line between common sense and making life miserable for everyone? " Nana " Sharon ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 Hi Nanna Sharon, I wanted to answer your questions about the outside play and special precautions. I let play in the sand box and I let her dig in the dirt and help me garden, (she loves to grow things) I let her come to the nursery to help me pick things out but I don't keep houseplants (I kill them and having the dirt in the house worries me because of b.cepacia.) can play in treated pools or the kind you dump out, we don't have any lakes around us but I have let her play at the beach and in the ocean. The big thing is to wash the hands after those activities with antibacterial soap and/or hand sanitizer. I want her to do the things that she loves but I want her to be safe too. I can't put her in a bubble. And the PA really is everywhere! Thanks everyone I just want to thank everyone who has responded to my search for Spanish speaking parents of CF kids. I now have quite a number of people and web sites to contact. All I have to do now is convince that she CAN use the " web " (she'll either have to use my computer or we'll have to get her one, so it may take a little while), but just knowing that all these resources exist is simply wonderful. Now, the PA. Yes Jan, it does grow in the screens in the aerators. I've now removed mine. Our nurse also told me about the shower heads which also allow the bacteria to become somewhat aerosolized when they are turned on. Since loves showers, I'm going to fix one shower head so I can easily remove it and replace it with one that has been thoroughtly sanitized for her. I still worry about her visiting where there are tropical fish aquariums, although they are " healthy " , covered, aquariums (fish with pseudomonas show definite signs). I really want to learn more about this. But am not finding too much info. I did find that it is more of a problem in salt water aquariums, just the opposite of what I would have thought! We were initially worried about my birds, but the Drs. say as long as they're healthy, they're OK (of course loves them too). Since birds have very delicate respiratory systems, it's very easy to spot an illness (pseudomonas in them causes respiratory symptoms almost immediately). I do use hepa filters for " dust " control(had them for the birds respiratory health BEFORE was born). I still would like to know what precautions people take with the kids playing OUTSIDE. Are most water sports (aside from well treated swimming pools) totally " off limits " . What about trips to nurseries or greenhouses to buy yard plants? Are a large number of potted house plants a danger? If a " mulching " mower is used on the lawn, doesn't the decaying " mulch " create a danger in play areas? What about children's sandboxes that are outside? I could go on all night, but where do you draw the line between common sense and making life miserable for everyone? " Nana " Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 Hi Nanna Sharon, I wanted to answer your questions about the outside play and special precautions. I let play in the sand box and I let her dig in the dirt and help me garden, (she loves to grow things) I let her come to the nursery to help me pick things out but I don't keep houseplants (I kill them and having the dirt in the house worries me because of b.cepacia.) can play in treated pools or the kind you dump out, we don't have any lakes around us but I have let her play at the beach and in the ocean. The big thing is to wash the hands after those activities with antibacterial soap and/or hand sanitizer. I want her to do the things that she loves but I want her to be safe too. I can't put her in a bubble. And the PA really is everywhere! Thanks everyone I just want to thank everyone who has responded to my search for Spanish speaking parents of CF kids. I now have quite a number of people and web sites to contact. All I have to do now is convince that she CAN use the " web " (she'll either have to use my computer or we'll have to get her one, so it may take a little while), but just knowing that all these resources exist is simply wonderful. Now, the PA. Yes Jan, it does grow in the screens in the aerators. I've now removed mine. Our nurse also told me about the shower heads which also allow the bacteria to become somewhat aerosolized when they are turned on. Since loves showers, I'm going to fix one shower head so I can easily remove it and replace it with one that has been thoroughtly sanitized for her. I still worry about her visiting where there are tropical fish aquariums, although they are " healthy " , covered, aquariums (fish with pseudomonas show definite signs). I really want to learn more about this. But am not finding too much info. I did find that it is more of a problem in salt water aquariums, just the opposite of what I would have thought! We were initially worried about my birds, but the Drs. say as long as they're healthy, they're OK (of course loves them too). Since birds have very delicate respiratory systems, it's very easy to spot an illness (pseudomonas in them causes respiratory symptoms almost immediately). I do use hepa filters for " dust " control(had them for the birds respiratory health BEFORE was born). I still would like to know what precautions people take with the kids playing OUTSIDE. Are most water sports (aside from well treated swimming pools) totally " off limits " . What about trips to nurseries or greenhouses to buy yard plants? Are a large number of potted house plants a danger? If a " mulching " mower is used on the lawn, doesn't the decaying " mulch " create a danger in play areas? What about children's sandboxes that are outside? I could go on all night, but where do you draw the line between common sense and making life miserable for everyone? " Nana " Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 >>I could go on all night, but where do you draw the line between common sense and making life miserable for everyone?<< Hi Sharon, I have found my peace of mind in that I only worry about cross- infections in the hospital and from other pwcf. We don't allow Fiona to meet other pwcf. And we are very cautious during our clinic visits. I think one can't protect the kids from bacteria in the normal environment. We wash our hands a lot, don't let moist towels lay around in the bathroom, Fiona uses separate toothbrushs in the morning and in the evening and we let the first two gallons of water go every morning. Silke needs those little things to get the feeling that she has done everything possible. Peace Torsten, dad of Fiona 6wcf and Sebastian newborn wocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 >>I could go on all night, but where do you draw the line between common sense and making life miserable for everyone?<< Hi Sharon, I have found my peace of mind in that I only worry about cross- infections in the hospital and from other pwcf. We don't allow Fiona to meet other pwcf. And we are very cautious during our clinic visits. I think one can't protect the kids from bacteria in the normal environment. We wash our hands a lot, don't let moist towels lay around in the bathroom, Fiona uses separate toothbrushs in the morning and in the evening and we let the first two gallons of water go every morning. Silke needs those little things to get the feeling that she has done everything possible. Peace Torsten, dad of Fiona 6wcf and Sebastian newborn wocf Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.