Guest guest Posted March 11, 2003 Report Share Posted March 11, 2003 I am new to the wesites about CF, but I have learned so much from reading all the emails, thank you all. I started my search to find alternatives for treating my daughter within the last month. She has had a rough couple of years, she has pseusdomonas, and it has really been acting up. She has had 3 week courses of antibiotics about every 6 mos over the last 2 years. but since Oct. this will be the 3 time. The last time she came off a course, the end of Jan. her lungs were cleaner then they had been in a long time. The within 3 weeks she caught and cold and the " bad spots " started coming back. She goes in the hospital tomorrow to be started on antibiotics because Friday she is getting a port put in. She will then do another 3 week course of antibiotics. She has became resistant to Cipro and starting to get resistant to Tobra. I am very frustrated because the treatment plan they are using for her is not working, it temporarily makes it better but now within weeks it comes right back. I have read about a few different things that he should try and I have asked about them and I have not gotten any answers from him, however by Friday he will tell me what his plan is or we will be fnding another doctor. My question to you all is, what works for you? What have you found to really help to keep your pseudomonas under control? I also have CF and pseudomonas, but I am able to keep mine more controlled than her, except when I am really stressed and worried about her like now. Thank you all again for all your help! Quote Link to comment Share on other sites More sharing options...
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