Re: 2 yo son just diagnosed-RESPONSE

[Guest guest]

Your world did fall apart! Give yourself time to grieve and absorb

everything. When my daughter was diagnosed it took almost 2 years to fully

absorb everything. We can go through the motions of life but not deal with

the EMOTIONS.....

We are a very supportive group and truly can relate to what your going

through and feeling. Its like someone took out your heart and stepped on it.

I won't lie and say things GET better but YOU will learn to COPE and thus,

things will get better.

Hang in there, don't be hard on yourself - its ok to feel bad....but remember

your have a child who needs YOU...........

The best way to learn is to ask questions...any questions. Don't ever be

afraid to look stupid. If you don't understand something make the Dr.RN

explain it to you to YOUR satisifaction. You are paying THEM........

Rosemary from New York with 3 children with CF -

they are 12.5, 10, 6......

I coined the phrase " BREATHE DAMMIT " ; we have a dog we named -are you ready

for this - TOBI after their medication!!! At least it wasn't albuterol or

Coly...