Paige culture results Enterobacter Cloacae?

[Guest guest]

Hello all,

Paige is still growing moderate amount of MRSA, as well as something

called Enterobacter Cloacae, which they dont seem to be too worried

about.

she is eating fine, sleeping well, playing hard, happy as a clam,

delightful in every way. She still has a little cough, not much today

at all, and sounds rattley in the chest. Even through MUCH CPT she

rattles. They are thinking about putting her in the club for IVs.

This would be very hard on her, emotionally, as well as physically.

From where we sit, she doesnt even look sick....no fever NOTHING. She

is wonderful. Just rattley. Can someone please explain the importance

of the rattle sound, and why it might mean that she needs ivs, even

though otherwise she is fine. I presented this question to THE

GREATEST WOMAN ALIVE...her cf specialist as well,but I am waiting for

the answer.

Also any info on the EC bug would be great.

She is sleepign now, and I just listened to her...SHE SOUNDS

CLEARRRRRRRR...thank goodness, maybe this will all go away now. She

has been on Septra for almost two weeks. I hope the rattle stays gone!

Thanks Guys

Mom to KM 8 wocf, and Paige 3 wcf, and author of " Juggling Cystic

Fibrosis. A Health Journal "

[Guest guest]

Hello all,

Paige is still growing moderate amount of MRSA, as well as something

called Enterobacter Cloacae, which they dont seem to be too worried

about.

she is eating fine, sleeping well, playing hard, happy as a clam,

delightful in every way. She still has a little cough, not much today

at all, and sounds rattley in the chest. Even through MUCH CPT she

rattles. They are thinking about putting her in the club for IVs.

This would be very hard on her, emotionally, as well as physically.

From where we sit, she doesnt even look sick....no fever NOTHING. She

is wonderful. Just rattley. Can someone please explain the importance

of the rattle sound, and why it might mean that she needs ivs, even

though otherwise she is fine. I presented this question to THE

GREATEST WOMAN ALIVE...her cf specialist as well,but I am waiting for

the answer.

Also any info on the EC bug would be great.

She is sleepign now, and I just listened to her...SHE SOUNDS

CLEARRRRRRRR...thank goodness, maybe this will all go away now. She

has been on Septra for almost two weeks. I hope the rattle stays gone!

Thanks Guys

Mom to KM 8 wocf, and Paige 3 wcf, and author of " Juggling Cystic

Fibrosis. A Health Journal "