Does DCCC have casein?

[Guest guest]

I am thinking non-stop about what might be agrravating 's seizures

(aside from the obvious brain damage). He was doing really well at the

beginning of the diet. I have added almond milk (a virtual necessity as

he won't drink anything else) and making custard from the dccc (so eggs

and dccc). I thought dccc would be OK since it wouldn't have lactose,

but maybe it's the casein? We already tried one med increase which

helped with the abscence but the myoclonic clusters are increasing in

number and intensity. While the neuro is ok with another increase I

don't want to do it because I don't think it would help. I'm going crazy

here. Aside from the seizures is gaining weight, his energy

continues to improve, his poops are lovely. I'm stopping the custard

tomorrow. I imagine it will take a few days to get out of his system.

The question is how long do I wait? Could it be the problem?? Any help

would be appreciated. Thanks.

Sharon, mom to 6 weeks SCD

p.s. the amino acid thing turned out to be nothing

Sharon Cruikshank

[Guest guest]

I am thinking non-stop about what might be agrravating 's seizures

(aside from the obvious brain damage). He was doing really well at the

beginning of the diet. I have added almond milk (a virtual necessity as

he won't drink anything else) and making custard from the dccc (so eggs

and dccc). I thought dccc would be OK since it wouldn't have lactose,

but maybe it's the casein? We already tried one med increase which

helped with the abscence but the myoclonic clusters are increasing in

number and intensity. While the neuro is ok with another increase I

don't want to do it because I don't think it would help. I'm going crazy

here. Aside from the seizures is gaining weight, his energy

continues to improve, his poops are lovely. I'm stopping the custard

tomorrow. I imagine it will take a few days to get out of his system.

The question is how long do I wait? Could it be the problem?? Any help

would be appreciated. Thanks.

Sharon, mom to 6 weeks SCD

p.s. the amino acid thing turned out to be nothing

Sharon Cruikshank