Re: Thanks everyone/ spanish yahoo list

May 27, 2003

I have to say that I was not aware of the Yahoo list in Spanish, and

I am very impressed with it. I just joined and let me tell you most

of everybody are adults living with CF some parents and a few health

professionals. So, I would encourage your daughter in law to learn

how to use the web, specially the list in spanish.

Love,

mom of a 9pcf, Venanzio 6 nocf, Pepe 3nocf

>

> I just want to thank everyone who has responded to my search for

> Spanish speaking parents of CF kids. I now have quite a number of

> people and web sites to contact. All I have to do now is convince

> that she CAN use the " web " (she'll either have to use my

> computer or we'll have to get her one, so it may take a little

> while), but just knowing that all these resources exist is simply

> wonderful.

>

> Now, the PA. Yes Jan, it does grow in the screens in the

aerators.

> I've now removed mine. Our nurse also told me about the shower

heads

> which also allow the bacteria to become somewhat aerosolized when

> they are turned on. Since loves showers, I'm going to fix one

> shower head so I can easily remove it and replace it with one that

> has been thoroughtly sanitized for her. I still worry about her

> visiting where there are tropical fish aquariums, although they

> are " healthy " , covered, aquariums (fish with pseudomonas show

> definite signs). I really want to learn more about this. But am not

> finding too much info. I did find that it is more of a problem in

> salt water aquariums, just the opposite of what I would have

thought!

>

> We were initially worried about my birds, but the Drs. say as long

> as they're healthy, they're OK (of course loves them too).

Since

> birds have very delicate respiratory systems, it's very easy to

spot

> an illness (pseudomonas in them causes respiratory symptoms almost

> immediately). I do use hepa filters for " dust " control(had them for

> the birds respiratory health BEFORE was born).

>

> I still would like to know what precautions people take with the

kids

> playing OUTSIDE. Are most water sports (aside from well treated

> swimming pools) totally " off limits " . What about trips to

nurseries

> or greenhouses to buy yard plants? Are a large number of potted

house

> plants a danger? If a " mulching " mower is used on the lawn, doesn't

> the decaying " mulch " create a danger in play areas? What about

> children's sandboxes that are outside?

>

> I could go on all night, but where do you draw the line between

> common sense and making life miserable for everyone?

>

> " Nana " Sharon

May 27, 2003