Guest guest Posted October 9, 2002 Report Share Posted October 9, 2002 Has anyone in Florida added an addendum to their living will which would express the patient's wishes NOT to have a feeding tube? I know these things differ state to state. Bob is starting to have alot of trouble with pureed food & thickened liquids, and expressed his wish not to have a feeding tube. He cannot talk, walk, or do anything for himself & he is really giving up. I feel no one can make that decision for him, but I think it would have to spelled out in the living will. I know this is a very touchy subject, but if anyone has any suggestions, I would appreciate hearing you either on or off line. I've called a psychologist in to speak to him, but that won't be until next week. Thanks for your help. Regards, jerrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2002 Report Share Posted October 9, 2002 Has anyone in Florida added an addendum to their living will which would express the patient's wishes NOT to have a feeding tube? I know these things differ state to state. Bob is starting to have alot of trouble with pureed food & thickened liquids, and expressed his wish not to have a feeding tube. He cannot talk, walk, or do anything for himself & he is really giving up. I feel no one can make that decision for him, but I think it would have to spelled out in the living will. I know this is a very touchy subject, but if anyone has any suggestions, I would appreciate hearing you either on or off line. I've called a psychologist in to speak to him, but that won't be until next week. Thanks for your help. Regards, jerrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2002 Report Share Posted October 9, 2002 For what it is worth, we lived in Ohio, but our doctor told us all we had to do was tell him yes or no. He said it did not have to be in writing. But as you said, things do differ in states so my info may not be valid for you. Bernice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2002 Report Share Posted October 9, 2002 For what it is worth, we lived in Ohio, but our doctor told us all we had to do was tell him yes or no. He said it did not have to be in writing. But as you said, things do differ in states so my info may not be valid for you. Bernice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2002 Report Share Posted October 9, 2002 Jerrie, I am not familiar with Florida law, but usually the patient can make a decision like that. Ask the hospital social worker for guidance on how to do it. He should be aware that without the PEG, he could aspirate (then they will want to put in a trach) so your doctor needs to know everything he wants and does not want. As far as I am concerned I feel the patient should have the last word, but should also be aware of the consequences. I followed Charlotte's request not to have an autopsy, even though I felt the autopsy might help others. Take care, Bill Werre ================================== deenzer@... wrote: >Has anyone in Florida added an addendum to their living will which would >express the patient's wishes NOT to have a feeding tube? I know these >things differ state to state. Bob is starting to have alot of trouble >with pureed food & thickened liquids, and expressed his wish not to have >a feeding tube. He cannot talk, walk, or do anything for himself & he is >really giving up. I feel no one can make that decision for him, but I >think it would have to spelled out in the living will. I know this is a >very touchy subject, but if anyone has any suggestions, I would >appreciate hearing you either on or off line. I've called a psychologist >in to speak to him, but that won't be until next week. Thanks for your >help. Regards, jerrie > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2002 Report Share Posted October 9, 2002 Jerrie, I am not familiar with Florida law, but usually the patient can make a decision like that. Ask the hospital social worker for guidance on how to do it. He should be aware that without the PEG, he could aspirate (then they will want to put in a trach) so your doctor needs to know everything he wants and does not want. As far as I am concerned I feel the patient should have the last word, but should also be aware of the consequences. I followed Charlotte's request not to have an autopsy, even though I felt the autopsy might help others. Take care, Bill Werre ================================== deenzer@... wrote: >Has anyone in Florida added an addendum to their living will which would >express the patient's wishes NOT to have a feeding tube? I know these >things differ state to state. Bob is starting to have alot of trouble >with pureed food & thickened liquids, and expressed his wish not to have >a feeding tube. He cannot talk, walk, or do anything for himself & he is >really giving up. I feel no one can make that decision for him, but I >think it would have to spelled out in the living will. I know this is a >very touchy subject, but if anyone has any suggestions, I would >appreciate hearing you either on or off line. I've called a psychologist >in to speak to him, but that won't be until next week. Thanks for your >help. Regards, jerrie > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 Yvonne, You did not do anything to apologize for. You gave valuable information that may help someone make an informed decision. Thanks for caring enough to respond. Take care, Bill Werre ===================== Yvonne Carpenter wrote: > My husband is using thickit. I also have a cook book called the > " Nonchew cookbook " . It can take him up to 2 hours to eat a meal. He > has a terrible time with reflux, coughing, choking, etc. He does not, > however, want a PEG tube. We have made sure we both understand the > consequences of his decision. Because of his refusal to have a PEG > tube he is on the hospice program here in Idaho. They provided us > with what I would call a " generic " living will. He has asked for no > heroic measures, including withholding food and water if it is > required thru a PEG tube. We also have a Durable Power of Attorney > for Health which was a notarized document. It names me, as his wife, > to make decisions for him. I love him so much that as difficult as it > will be I will honor his wishes. You might check with your local > Health and Welfare Department to determine what you might need to do. > Our Drsuggested to us to redo the living will rather than an addendum > which eliminates any confusion. As with everyone else who has > responded, I only know what is legal here in Idaho. I am sure I have > gone on too long and I apologize. My prayers are with you! > > > > Yvonne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 Yvonne, You did not do anything to apologize for. You gave valuable information that may help someone make an informed decision. Thanks for caring enough to respond. Take care, Bill Werre ===================== Yvonne Carpenter wrote: > My husband is using thickit. I also have a cook book called the > " Nonchew cookbook " . It can take him up to 2 hours to eat a meal. He > has a terrible time with reflux, coughing, choking, etc. He does not, > however, want a PEG tube. We have made sure we both understand the > consequences of his decision. Because of his refusal to have a PEG > tube he is on the hospice program here in Idaho. They provided us > with what I would call a " generic " living will. He has asked for no > heroic measures, including withholding food and water if it is > required thru a PEG tube. We also have a Durable Power of Attorney > for Health which was a notarized document. It names me, as his wife, > to make decisions for him. I love him so much that as difficult as it > will be I will honor his wishes. You might check with your local > Health and Welfare Department to determine what you might need to do. > Our Drsuggested to us to redo the living will rather than an addendum > which eliminates any confusion. As with everyone else who has > responded, I only know what is legal here in Idaho. I am sure I have > gone on too long and I apologize. My prayers are with you! > > > > Yvonne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 Jerrie, Rob and I are re-looking at our living wills and other documents and found this site which is very good: http://www.partnershipforcaring.org/HomePage/ If you click in the " advance directives " button on the left the individual states are listed, and the documents have been tailored to meet the regulations in each state. Don't forget to update your own documents too. Rob has my medical power of attorney, but it's becoming increasingly clear to me that he would have a very difficult time making informed decisions on my behalf. Good luck as you tackle this difficult task. Carol & Rob Lexington, MA MSA - Living Wills > Has anyone in Florida added an addendum to their living will which would > express the patient's wishes NOT to have a feeding tube? I know these > things differ state to state. Bob is starting to have alot of trouble > with pureed food & thickened liquids, and expressed his wish not to have > a feeding tube. He cannot talk, walk, or do anything for himself & he is > really giving up. I feel no one can make that decision for him, but I > think it would have to spelled out in the living will. I know this is a > very touchy subject, but if anyone has any suggestions, I would > appreciate hearing you either on or off line. I've called a psychologist > in to speak to him, but that won't be until next week. Thanks for your > help. Regards, jerrie > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 Jerrie, Rob and I are re-looking at our living wills and other documents and found this site which is very good: http://www.partnershipforcaring.org/HomePage/ If you click in the " advance directives " button on the left the individual states are listed, and the documents have been tailored to meet the regulations in each state. Don't forget to update your own documents too. Rob has my medical power of attorney, but it's becoming increasingly clear to me that he would have a very difficult time making informed decisions on my behalf. Good luck as you tackle this difficult task. Carol & Rob Lexington, MA MSA - Living Wills > Has anyone in Florida added an addendum to their living will which would > express the patient's wishes NOT to have a feeding tube? I know these > things differ state to state. Bob is starting to have alot of trouble > with pureed food & thickened liquids, and expressed his wish not to have > a feeding tube. He cannot talk, walk, or do anything for himself & he is > really giving up. I feel no one can make that decision for him, but I > think it would have to spelled out in the living will. I know this is a > very touchy subject, but if anyone has any suggestions, I would > appreciate hearing you either on or off line. I've called a psychologist > in to speak to him, but that won't be until next week. Thanks for your > help. Regards, jerrie > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 Carol, My daughter has had my medical power of attorney since 1996 and was named as an alternate on Charlotte's medical power of attorney. She was also added to our bank accounts at that time. If you are folowing the DC area sniper thing, I passed the gas station in Manassas within a hour of when the person was shot there last night, on my way home from work. Glad I filled up earlier that day as they are one of the cheapest places around there. There is a Bob restaurant and a PETCO with a bunch of bushes right across the road where someone could hide. Take care, Bill Werre ================================= Carol Langer wrote: >Jerrie, > >Rob and I are re-looking at our living wills and other documents and found >this site which is very good: > >http://www.partnershipforcaring.org/HomePage/ > >If you click in the " advance directives " button on the left the individual >states are listed, and the documents have been tailored to meet the >regulations in each state. > >Don't forget to update your own documents too. Rob has my medical power of >attorney, but it's becoming increasingly clear to me that he would have a >very difficult time making informed decisions on my behalf. > >Good luck as you tackle this difficult task. > >Carol & Rob > Lexington, MA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 Carol, My daughter has had my medical power of attorney since 1996 and was named as an alternate on Charlotte's medical power of attorney. She was also added to our bank accounts at that time. If you are folowing the DC area sniper thing, I passed the gas station in Manassas within a hour of when the person was shot there last night, on my way home from work. Glad I filled up earlier that day as they are one of the cheapest places around there. There is a Bob restaurant and a PETCO with a bunch of bushes right across the road where someone could hide. Take care, Bill Werre ================================= Carol Langer wrote: >Jerrie, > >Rob and I are re-looking at our living wills and other documents and found >this site which is very good: > >http://www.partnershipforcaring.org/HomePage/ > >If you click in the " advance directives " button on the left the individual >states are listed, and the documents have been tailored to meet the >regulations in each state. > >Don't forget to update your own documents too. Rob has my medical power of >attorney, but it's becoming increasingly clear to me that he would have a >very difficult time making informed decisions on my behalf. > >Good luck as you tackle this difficult task. > >Carol & Rob > Lexington, MA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2002 Report Share Posted October 11, 2002 The subject of my father's living will has come up in my family in the last few weeks. He was hospitalised because of aspiration pneumonia and the possibility of a feeding tube came up. My father does not want one either. This is a difficult topic of discussion not that he can carry on much of a conversation these days. He has since come out of the hospital and he is feeling " better " . He can swallow some soft foods and also needs thickit. He chokes easily. We came to understand that the function of the living will is to express his feelings if he would not be able to. . We live in Canada but I am sure that this is also the case in the US. I beleive that a feeding-tube is an extraordinary measure. I wish that, as a society, we paid more attention to the quality of people's lives as they approached it's end so that they could die in dignity and at peace. peace, Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2002 Report Share Posted October 11, 2002 The subject of my father's living will has come up in my family in the last few weeks. He was hospitalised because of aspiration pneumonia and the possibility of a feeding tube came up. My father does not want one either. This is a difficult topic of discussion not that he can carry on much of a conversation these days. He has since come out of the hospital and he is feeling " better " . He can swallow some soft foods and also needs thickit. He chokes easily. We came to understand that the function of the living will is to express his feelings if he would not be able to. . We live in Canada but I am sure that this is also the case in the US. I beleive that a feeding-tube is an extraordinary measure. I wish that, as a society, we paid more attention to the quality of people's lives as they approached it's end so that they could die in dignity and at peace. peace, Joanne Quote Link to comment Share on other sites More sharing options...
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