Keeping B/P up and Help Needed

October 10, 2002

I am resending an e-mail I sent a while ago. It addresses the use of Florinef.

Peg and Jim from Guam

>Date: Sat, 28 Sep 2002 10:34:34

>To: ShyDrager

>

>Subject: Keeping B/P up

>

>Shirley,

>

>I'm going to respond to the part of your memo that talks about raising B/P

when standing. You don't list the current medicines that Ralph is on so what

I say may not be relevant. We had a period of time where it was difficult to

get Peg's B/P up high enough to take care of her B/P needs when she was

standing. That period of time coincided with a time when a local neuro took

Peg off Florinef / Fludrocortisone (sp?) because he became overly worried

about some high B/P spikes that Peg had experienced. After several weeks it

was almost impossible to keep Peg's B/P up sufficiently using the other

approaches such as liquids and midodrine and extra salt. After about 6

months we got to our neuro expert in the States who stated that in his

experience it was almost impossible to keep the B/P up over a long period of

time without the use of florinef. He immediately added florinef back to

Peg's medicine list and over several weeks we were able to get her B/P under

better control and were also able to keep it up so most times she could

stand without getting excessively dizzy.

>

>*********

> Date: Fri, 27 Sep 2002 11:46:20 -0400 (Eastern Daylight Time)

>

>Subject: Ralph's in the Hospital Still

>

>Hi All,

>

>Ralph is still in the hospital, they are having a extremely hard time in

>raising his blood pressure when he is standing. Anything that anyone can

>recommend. I am so tired of trying to tell these different people at the

>hospital about ShyDrager. One of the nurses said it was wrote down Shy

>Dragon. I could scream. They have him on all the normal stuff and had been

>working somewhat, since June, but it is not now. They are trying another

>medicine. Please send prayers! Shirley and Ralph

>

> " I believe that friends are quiet angels who lift us to our feet when our

>wings have trouble remembering how to fly "

>CareWife@...,OmegaMom45@... , AOL Instant Messenger -

>OmegaMom44, Yahoo Messenger and MSN Messenger - ses835

>

>***************

>

********************************

*** Peg & Jim

*** # 29 Cruz Heights

*** Ipan-Talofofo, Guam 96930-4736

*** USA

***

*** Note: Guam is 15 hours ahead of

*** Eastern Standard Time (EST).

*** 14 ahead of EDT.

********************************

October 10, 2002