Re: Update and Question/Joan

[Guest guest]

Joan, polycystic kidneys is an inherited disease. Erma Bombeck died

from it. My father died from it, and each of my kids has a 50%

chance of getting it. It doesn't effect me much now, except for

being on a low protein and salt restricted diet. But I have a 50%

chance or so of having kidney failure by late middle age. That is

one reason I need to get this weight off... Janice

> > About leg cramps, I've been getting them for about a year, long

> before the

> > surgery. At first I was told to drink more liquids, but that

> didn't help.

> > I have Quinine capsules I take occassionally when I'm having

> trouble. The

> > cramps wake me in my sleep and I can't even get out of bed with

> such severe

> > pain and cramping. I wonder if mine could be Diabetic

> related.....lack of

> > circulation. Mine couldn't be the potassium as my kidneys

don't

> filter it

> > out and I have to take medicine to rid the body of it. I think

> doctors

> > treat cramping like this about the way they treat nausea and

> dizzyness.

> > They really don't know!!!!! Recently my doctor gave me pills

for

> the

> > dizzyness, and said it's hard to know what's causing it.

Turned

> out it was

> > the side effect of an RX he gave me. Hmmmmmm. Seems like we

have

> to be

> > more knowledgeable than in the past. Before I take any RX I'm

> given, I get

> > on the internet and research it. If I don't like it, I'll

have it

> changed.

> > My kidney doctor said not to take my pain pills because they

were

> Ibuprofen

> > based (which I can't have anymore anyway), and gave me an RX

that

> was

> > better. The incidence of side effects for this drug was so

> frightening, I

> > never had it filled. I'd rather have the knee pain. OOOps,

Joan,

> don't get

> > started on doctors....

> >

> > Joan

> > LAP RNY 11/18/03

> > Dr. Higa, Fresno, CA

> > 282pre-op/275surg/243/140

> >

> >

> >

[Guest guest]

Joan, polycystic kidneys is an inherited disease. Erma Bombeck died

from it. My father died from it, and each of my kids has a 50%

chance of getting it. It doesn't effect me much now, except for

being on a low protein and salt restricted diet. But I have a 50%

chance or so of having kidney failure by late middle age. That is

one reason I need to get this weight off... Janice

> > About leg cramps, I've been getting them for about a year, long

> before the

> > surgery. At first I was told to drink more liquids, but that

> didn't help.

> > I have Quinine capsules I take occassionally when I'm having

> trouble. The

> > cramps wake me in my sleep and I can't even get out of bed with

> such severe

> > pain and cramping. I wonder if mine could be Diabetic

> related.....lack of

> > circulation. Mine couldn't be the potassium as my kidneys

don't

> filter it

> > out and I have to take medicine to rid the body of it. I think

> doctors

> > treat cramping like this about the way they treat nausea and

> dizzyness.

> > They really don't know!!!!! Recently my doctor gave me pills

for

> the

> > dizzyness, and said it's hard to know what's causing it.

Turned

> out it was

> > the side effect of an RX he gave me. Hmmmmmm. Seems like we

have

> to be

> > more knowledgeable than in the past. Before I take any RX I'm

> given, I get

> > on the internet and research it. If I don't like it, I'll

have it

> changed.

> > My kidney doctor said not to take my pain pills because they

were

> Ibuprofen

> > based (which I can't have anymore anyway), and gave me an RX

that

> was

> > better. The incidence of side effects for this drug was so

> frightening, I

> > never had it filled. I'd rather have the knee pain. OOOps,

Joan,

> don't get

> > started on doctors....

> >

> > Joan

> > LAP RNY 11/18/03

> > Dr. Higa, Fresno, CA

> > 282pre-op/275surg/243/140

> >

> >

> >

[Guest guest]

Janice, I'm so sorry to hear the statistics. I didn't know that's what Erma

died from. She wasn't very old. Do the kidneys need low protein? If so,

how does it work for you with the high protein that is mostly suggested? I

bet you feel as I do about my kids. Everyone on my dad's side of the family

has Diabetes. Not one of us escaped it. Strike #1, Several of my mom's

side have/had it. And 2 of my siblings, and nephew have it. My daughter is

24, and already during pregnancy she was having trouble with sugar, as I did

in my 20's. The best I've found to do, is make sure the kids know the

risks, know the things they can do in their health to hopefully stave it off

or slow it down. So, getting the weight off will help you?? 2 years ago

when I started having problems, the doctor said 10 years. But with the

surgery and weight loss, he said it can be slowed down.

Have a Merry Christmas with your family.

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/243/140

Re: Update and Question/Joan

Joan, polycystic kidneys is an inherited disease. Erma Bombeck died

from it. My father died from it, and each of my kids has a 50%

chance of getting it. It doesn't effect me much now, except for

being on a low protein and salt restricted diet. But I have a 50%

chance or so of having kidney failure by late middle age. That is

one reason I need to get this weight off... Janice

> > About leg cramps, I've been getting them for about a year, long

> before the

> > surgery. At first I was told to drink more liquids, but that

> didn't help.

> > I have Quinine capsules I take occassionally when I'm having

> trouble. The

> > cramps wake me in my sleep and I can't even get out of bed with

> such severe

> > pain and cramping. I wonder if mine could be Diabetic

> related.....lack of

> > circulation. Mine couldn't be the potassium as my kidneys

don't

> filter it

> > out and I have to take medicine to rid the body of it. I think

> doctors

> > treat cramping like this about the way they treat nausea and

> dizzyness.

> > They really don't know!!!!! Recently my doctor gave me pills

for

> the

> > dizzyness, and said it's hard to know what's causing it.

Turned

> out it was

> > the side effect of an RX he gave me. Hmmmmmm. Seems like we

have

> to be

> > more knowledgeable than in the past. Before I take any RX I'm

> given, I get

> > on the internet and research it. If I don't like it, I'll

have it

> changed.

> > My kidney doctor said not to take my pain pills because they

were

> Ibuprofen

> > based (which I can't have anymore anyway), and gave me an RX

that

> was

> > better. The incidence of side effects for this drug was so

> frightening, I

> > never had it filled. I'd rather have the knee pain. OOOps,

Joan,

> don't get

> > started on doctors....

> >

> > Joan

> > LAP RNY 11/18/03

> > Dr. Higa, Fresno, CA

> > 282pre-op/275surg/243/140

> >

> >

> >

[Guest guest]

Janice, I'm so sorry to hear the statistics. I didn't know that's what Erma

died from. She wasn't very old. Do the kidneys need low protein? If so,

how does it work for you with the high protein that is mostly suggested? I

bet you feel as I do about my kids. Everyone on my dad's side of the family

has Diabetes. Not one of us escaped it. Strike #1, Several of my mom's

side have/had it. And 2 of my siblings, and nephew have it. My daughter is

24, and already during pregnancy she was having trouble with sugar, as I did

in my 20's. The best I've found to do, is make sure the kids know the

risks, know the things they can do in their health to hopefully stave it off

or slow it down. So, getting the weight off will help you?? 2 years ago

when I started having problems, the doctor said 10 years. But with the

surgery and weight loss, he said it can be slowed down.

Have a Merry Christmas with your family.

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/243/140

Re: Update and Question/Joan

Joan, polycystic kidneys is an inherited disease. Erma Bombeck died

from it. My father died from it, and each of my kids has a 50%

chance of getting it. It doesn't effect me much now, except for

being on a low protein and salt restricted diet. But I have a 50%

chance or so of having kidney failure by late middle age. That is

one reason I need to get this weight off... Janice

> > About leg cramps, I've been getting them for about a year, long

> before the

> > surgery. At first I was told to drink more liquids, but that

> didn't help.

> > I have Quinine capsules I take occassionally when I'm having

> trouble. The

> > cramps wake me in my sleep and I can't even get out of bed with

> such severe

> > pain and cramping. I wonder if mine could be Diabetic

> related.....lack of

> > circulation. Mine couldn't be the potassium as my kidneys

don't

> filter it

> > out and I have to take medicine to rid the body of it. I think

> doctors

> > treat cramping like this about the way they treat nausea and

> dizzyness.

> > They really don't know!!!!! Recently my doctor gave me pills

for

> the

> > dizzyness, and said it's hard to know what's causing it.

Turned

> out it was

> > the side effect of an RX he gave me. Hmmmmmm. Seems like we

have

> to be

> > more knowledgeable than in the past. Before I take any RX I'm

> given, I get

> > on the internet and research it. If I don't like it, I'll

have it

> changed.

> > My kidney doctor said not to take my pain pills because they

were

> Ibuprofen

> > based (which I can't have anymore anyway), and gave me an RX

that

> was

> > better. The incidence of side effects for this drug was so

> frightening, I

> > never had it filled. I'd rather have the knee pain. OOOps,

Joan,

> don't get

> > started on doctors....

> >

> > Joan

> > LAP RNY 11/18/03

> > Dr. Higa, Fresno, CA

> > 282pre-op/275surg/243/140

> >

> >

> >

[Guest guest]

thanks Joan, and Merry Christmas to you and your family. My protein

restriction is about 65 grams, so I'm hoping it will work with the

wls. Once I get an appointment to talk to the doctor that is one

of the things we will talk about. Most people think Erma died from

Cancer, but it was her kidneys. She refused to let her celebrity

status move her up the list for kidney transplant. Janice

> > > About leg cramps, I've been getting them for about a year,

long

> > before the

> > > surgery. At first I was told to drink more liquids, but

that

> > didn't help.

> > > I have Quinine capsules I take occassionally when I'm

having

> > trouble. The

> > > cramps wake me in my sleep and I can't even get out of bed

with

> > such severe

> > > pain and cramping. I wonder if mine could be Diabetic

> > related.....lack of

> > > circulation. Mine couldn't be the potassium as my kidneys

> don't

> > filter it

> > > out and I have to take medicine to rid the body of it. I

think

> > doctors

> > > treat cramping like this about the way they treat nausea

and

> > dizzyness.

> > > They really don't know!!!!! Recently my doctor gave me

pills

> for

> > the

> > > dizzyness, and said it's hard to know what's causing it.

> Turned

> > out it was

> > > the side effect of an RX he gave me. Hmmmmmm. Seems like

we

> have

> > to be

> > > more knowledgeable than in the past. Before I take any RX

I'm

> > given, I get

> > > on the internet and research it. If I don't like it, I'll

> have it

> > changed.

> > > My kidney doctor said not to take my pain pills because

they

> were

> > Ibuprofen

> > > based (which I can't have anymore anyway), and gave me an

RX

> that

> > was

> > > better. The incidence of side effects for this drug was so

> > frightening, I

> > > never had it filled. I'd rather have the knee pain.

OOOps,

> Joan,

> > don't get

> > > started on doctors....

> > >

> > > Joan

> > > LAP RNY 11/18/03

> > > Dr. Higa, Fresno, CA

> > > 282pre-op/275surg/243/140

> > >

> > >

> > >

[Guest guest]

thanks Joan, and Merry Christmas to you and your family. My protein

restriction is about 65 grams, so I'm hoping it will work with the

wls. Once I get an appointment to talk to the doctor that is one

of the things we will talk about. Most people think Erma died from

Cancer, but it was her kidneys. She refused to let her celebrity

status move her up the list for kidney transplant. Janice

> > > About leg cramps, I've been getting them for about a year,

long

> > before the

> > > surgery. At first I was told to drink more liquids, but

that

> > didn't help.

> > > I have Quinine capsules I take occassionally when I'm

having

> > trouble. The

> > > cramps wake me in my sleep and I can't even get out of bed

with

> > such severe

> > > pain and cramping. I wonder if mine could be Diabetic

> > related.....lack of

> > > circulation. Mine couldn't be the potassium as my kidneys

> don't

> > filter it

> > > out and I have to take medicine to rid the body of it. I

think

> > doctors

> > > treat cramping like this about the way they treat nausea

and

> > dizzyness.

> > > They really don't know!!!!! Recently my doctor gave me

pills

> for

> > the

> > > dizzyness, and said it's hard to know what's causing it.

> Turned

> > out it was

> > > the side effect of an RX he gave me. Hmmmmmm. Seems like

we

> have

> > to be

> > > more knowledgeable than in the past. Before I take any RX

I'm

> > given, I get

> > > on the internet and research it. If I don't like it, I'll

> have it

> > changed.

> > > My kidney doctor said not to take my pain pills because

they

> were

> > Ibuprofen

> > > based (which I can't have anymore anyway), and gave me an

RX

> that

> > was

> > > better. The incidence of side effects for this drug was so

> > frightening, I

> > > never had it filled. I'd rather have the knee pain.

OOOps,

> Joan,

> > don't get

> > > started on doctors....

> > >

> > > Joan

> > > LAP RNY 11/18/03

> > > Dr. Higa, Fresno, CA

> > > 282pre-op/275surg/243/140

> > >

> > >

> > >

[Guest guest]

Janice, the amount of protein doctors and nutritionists want varies widely.

I follow what I was told which right now is around 50gm a day, and later the

optimum would be 75gm. They had me follow the 75 gm for months before the

surgery, so I'd be more ready. I recently asked the surgeon's assistant

about the difference in protein they prescribe, as evidenced by this group.

She said different doctors. I questioned it further and she said the

surgery itself had a lot to do with it.....the more intestine bypassed, the

higher protein need. These doctors practice somewhere between 9 " -12 " of

bypassed intestine. They decided to keep it a minimal level to stay away

from malabsorbtion problems. Be armed with your questions when you see the

doctor.

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/243/140

Re: Update and Question/Joan

thanks Joan, and Merry Christmas to you and your family. My protein

restriction is about 65 grams, so I'm hoping it will work with the

wls. Once I get an appointment to talk to the doctor that is one

of the things we will talk about. Most people think Erma died from

Cancer, but it was her kidneys. She refused to let her celebrity

status move her up the list for kidney transplant. Janice

[Guest guest]

Janice, the amount of protein doctors and nutritionists want varies widely.

I follow what I was told which right now is around 50gm a day, and later the

optimum would be 75gm. They had me follow the 75 gm for months before the

surgery, so I'd be more ready. I recently asked the surgeon's assistant

about the difference in protein they prescribe, as evidenced by this group.

She said different doctors. I questioned it further and she said the

surgery itself had a lot to do with it.....the more intestine bypassed, the

higher protein need. These doctors practice somewhere between 9 " -12 " of

bypassed intestine. They decided to keep it a minimal level to stay away

from malabsorbtion problems. Be armed with your questions when you see the

doctor.

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/243/140

Re: Update and Question/Joan

thanks Joan, and Merry Christmas to you and your family. My protein

restriction is about 65 grams, so I'm hoping it will work with the

wls. Once I get an appointment to talk to the doctor that is one

of the things we will talk about. Most people think Erma died from

Cancer, but it was her kidneys. She refused to let her celebrity

status move her up the list for kidney transplant. Janice

[Guest guest]

I realize that this comment is a bit off topic but as a transplant

coordinator and donor family member I can assure each and every one

of you that NO ONE can use their celebrity status to 'bump

themselves up " on the transplant list in America.

Thanks,

Maureen

> thanks Joan, and Merry Christmas to you and your family. My

protein

> restriction is about 65 grams, so I'm hoping it will work with the

> wls. Once I get an appointment to talk to the doctor that is one

> of the things we will talk about. Most people think Erma died

from

> Cancer, but it was her kidneys. She refused to let her celebrity

> status move her up the list for kidney transplant. Janice

>

]

[Guest guest]

I realize that this comment is a bit off topic but as a transplant

coordinator and donor family member I can assure each and every one

of you that NO ONE can use their celebrity status to 'bump

themselves up " on the transplant list in America.

Thanks,

Maureen

> thanks Joan, and Merry Christmas to you and your family. My

protein

> restriction is about 65 grams, so I'm hoping it will work with the

> wls. Once I get an appointment to talk to the doctor that is one

> of the things we will talk about. Most people think Erma died

from

> Cancer, but it was her kidneys. She refused to let her celebrity

> status move her up the list for kidney transplant. Janice

>

]